E-News
April 2004
Here is your update on
the TACA (TALK ABOUT CURING AUTISM) Group for April
2004 - #2. As always, email your thoughts and/or
questions. I want to make this e-newsletter informative
for you. Let me know your thoughts on how I can improve
it. To read this newsletter on line - please click
here: http://www.tacanow.com/enewsletters_archive/April_2004_2.htm
IF this email is NEW
to you and you don't recognize the name... WELCOME! These emails happen two to four times a month for the Southern California autism support group called TACA. As always, email your thoughts and/or questions. I want to make this
e-newsletter informative for you. Let me know your
thoughts on how I can improve it.
Talk About Curing Autism
(TACA) provides general information of interest to
the autism community. The information comes from
a variety of sources and TACA does not independently
verify any of it. The views expressed herein are
not necessarily TACA’s. We focus on parent information
and support, parent mentoring, dietary intervention,
the latest in medical research, special education
law, reviews of the latest treatments, and many other
topics relating to Autism. Our main goal is to build
our community so we can connect, share and support
each other. TACA has an official web site at: www.tacanow.com
In
This Month's Edition of TACA e-news:
-
Next
TACA Meeting Information
-
Upcoming
TACA Costa Mesa schedule & other TACA meeting
schedule info –
May – July 2004
-
General
News:
a. Upping the Autism Ante
b. Call to ACTION – Federal legislation IDEA Re-authorization
c. Latest CA State Budget News
d. LATEST REPORT ON AUTISM NUMBERS IN CA
-
Vaccine
News
a. SafeMinds Calls Upon ABC News to Make On-Air Correction
b. Information about the PRIME TIME STORY on Autism / ABA
-
TACA
Announces – New Parent Seminar Series
-
Dr
Jerry Kartzinel Medical Seminar Information
-
Need
more support? MORE Coffee Talk!
-
APRIL
= Autism Awareness Month AND an upcoming radio
program on AUTISM
a. Want an AUTISM AWARENESS PIN FOR APRIL?? Attend a TACA meeting for this
fundraiser and AUTISM AWARENESS MONTH!
-
-
Upcoming
Conferences & Seminars
-
Personal
note – (“hint” HIIIIEE-YA!)
|
1. Next TACA
Costa Mesa support group meeting
|
Date:
|
Saturday, May 8th
(always the 2nd Saturday of each month)
|
|
New Time:
|
1:00 pm - 4:00 pm
|
|
Topic:
|
Dr Christine Majors – Child
Neuro-psychologist
- What is in a test and outside evaluations? Why are
they important? - Where should you start? And important
observations about school district and Regional Center
testing.
|
|
Place:
|
VINEYARD NEWPORT
CHURCH - 102 East Baker Avenue - Costa Mesa
(I am happy to report the church is back!
With the new time, consider it our new
home!!)
|
|
|
(Please do not contact
the church for meeting details. They have graciously
offered use of their facility, but are not affiliated
with TACA.)
And remember, we are still a non-faith
based group!
|
|
Directions:
|
405 FWY South, Exit
Bristol
Right on Bristol
Left on Baker
Go under FREEWAY.
The Vineyard Church is on the corner
just after the freeway - turn left onto
the freeway access road, make FIRST right
into the Vineyard's parking lot.
|
2. Upcoming
TACA Costa Mesa Meeting Schedule
All
meetings at the Vineyard:
|
June 12, 2004:
|
NEW
PARENT SEMINAR (NOTE:
different start time and registration fee!)
Note: due to the Dr Jerry seminar for many
of the “advanced families,” we looked to
helping the “new families” on the TACA meeting
date. Regular TACA Costa Mesa meetings start
up again July! THANK
YOU FOR UNDERSTANDING!
|
|
June 19, 2004:
|
Dr Jerry Kartzinel:
The latest in Biomedical Intervention for Autism
Spectrum Disorders ($25 fee and reservations
required – more info in MAY).
|
|
July 10, 2004:
|
Neurology & Autism:
The latest findings in neurology and why genetics
play an important role Sara Spence M.D., Ph.D. – UCLA
Pediatric Neurology Director
|
|
Much more is being
planned for 2004! Stay tuned!
|
TACA
has FIVE So. California meeting locations:
1.
|
Costa
Mesa:
|
2nd Saturday of each
month (info in item #1 for meeting subjects and
details)
|
2.
|
Mission
Hills
|
(the Valley, man!): NEW location! 1st Sunday of every month, 7-9 p.m. Location: Jumping Genius ? 22750 Roscoe Blvd., West Hills (the corner of Roscoe Blvd. & Fallbrook Ave.) ... -- Info: Contact us.
|
3.
|
San
Diego:
|
4th Tuesday evening – 6:30-
8:00 p.m. – Info: Contact us.
May 25 - Dr. Mitch Perlman - "Independent Testing and
Evaluations"
June 22 - Anahita Parsi Renner, MA
- “Managing Behaviors Effectively"
|
4.
|
Corona:
|
3rd Saturday – 1:30–4:30
pm - Corona Library. Info: Contact us.
Saturday, May 15th - Dr. Deborah Swain (Tomatis)
|
5.
|
Torrance:
|
3rd Monday of each
month at Whole Foods Market on PCH in
Torrance – 6:30 - 9:00 p.m. Info: Contact us.
May 17: Dr. Slezak, Naturopath, will
talk about Brain Protocol for Autism
|
a) Upping
The Autism Ante
Upping the Autism Ante
[By Neil Munro for the
National Journal - Washington, DC. Available online
only through subscription or fee.] http://nationaljournal.com/pubs/nj/
Record numbers of children
have been diagnosed with severe autism over the past
few years, and many parents suspect that mercury-based
preservatives in vaccines are the cause. Officials
at the Centers for Disease Control and Prevention,
which sets vaccination policies, have just released
partial details of anew analysis that seems to exonerate
the preservative.
But parents and some
scientists were quick to criticize the analysis. The
details provided by the CDC are too vague, said Mark
Blaxill, a board member of one parents' advocacy group,
Safe Minds. “The thing we need is to get the right
answer, not the answer that either side wants.”
The stakes in this debate
are high. If the parents' claims are correct, the CDC's
vaccine policies over the past decade have caused autism
in tens of thousands of children. Many thousands more
may have suffered less-severe brain damage, the parents
say. If their argument is scientifically validated,
the careers of many vaccine professionals will be damaged,
as will the financial health of some vaccine makers.
If the parents and their allies are wrong, they are
diverting attention from other, potentially better
avenues of research.
The growth in autism
rates is difficult to track, but California’s Department
of Developmental Services has the most-detailed data.
In the first quarter of 2004, the state added 795 severely
autistic children to its treatment program; the number
of new patients was 173 during the same period in1994.
That kind of growth has boosted the number of severely
autistic children in the California system from 5,281
in 1994 to 24,297 in 2004.
The severely autistic
have a normal lifespan but require lifetime support
costing more than $1 million. According to the parents
and some scientists, a mercury preservative, Thimerosal,
which is used in many
vaccines, has increased the incidence of autism.
Thimerosal is still in
use, and many infants received extra doses of it after
1990, when CDC officials recommended additional vaccinations.
In response to growing
concerns, CDC officials in June 1999asked companies
to stop using Thimerosal in vaccines. They also conducted
a study, results of which were published in the November
2003 issue of Pediatrics; the article said “no consistent
significant associations were found” between the Thimerosal-containing
vaccines and disorders such as autism. The study was
based on a huge database maintained by HMOs on the
West Coast.
But the lead author of the article, Thomas
Verstraeten, said recently that the article “does
not state that we found evidence against an
association,” and he also recommended additional
study. Also, Mark Geier, a
vaccine specialist in private practice who
provides expert testimony for plaintiffs suing
vaccine makers, conducted a study of the same
database at the request of Rep. Dave Weldon,
R-Fla. Geier's study tested the hypothesis
that children who had received Thimerosal in
all four shots of the combined diphtheria,
tetanus, and pertussis vaccine were more likely
to be autistic than those who got no Thimerosal
in their four shots. Geier said his study revealed
10 times as many cases of autism among children
given Thimerosal. “That's a very nice hypothesis
... [and the result] was very concerning to
us,” researcher Robert Davis told a February
meeting of the National Academy of Sciences.
Davis is a co-author of the CDC's article in
Pediatrics. He is employed at the Center for
Health Studies, a commercial research center
that has contracted with the CDC to study vaccine
safety. The research center also receives funding
from vaccine makers. It is owned by Group Health
Cooperative, an HMO that provided part of the
database for the CDC study. Davis is also an
untenured research professor at the University
of Washington in Seattle.
“We attempted to replicate
[Geier's] analysis using the exact same data,” Davis
told the NAS audience, and discovered a rate of autism
among children given Thimerosal 18 times greater than
among those who received none. But because the children
in Geier’s study were of various ages, he said, “we
reanalyzed the data” to compensate for the differing
ages. The new analysis showed “no statistical association” between
Thimerosal and autism, Davis said.
But Blaxill says that
Davis's analysis “is dramatically different” from the
Geier study, partly because it includes many children
too young to be identified as autistic. Children can
be diagnosed as autistic before turning 3, but most
diagnoses aren’t made until after age 3.
Davis declined to provide
National Journal with a detailed description of his
analysis, but the CDC e-mailed additional information
about it showing that a high percentage of children
in the analysis were underage 2. Geier said his study
had already compensated for age differences by examining
children who had gotten all four of their DTP shots.
This selection ensured that all the children in his
study were at least 18 months old, he said. All the
children were under age 3, he said, because he was
not allowed to examine post-2000 data.
If the parents' claims are true, Blaxill said,
the reduced use of Thimerosal after 2000 will
reduce the number of new autism diagnoses within
a few years. This month, Rick Rollens, a California
autism activist, combed through state data
and reported that the number of new autism
cases over the past six months, as compared
with the same period 12 months ago, dipped
6 percent, from 1,560 to 1,471. A few more
quarters are needed to confirm the trend, Blaxill
said, but “that's the acid test.”
b) CALL
TO ACTION – FEDERAL LEGISLATION – IDEA RE-AUTHORIZATION
Greetings,
Our latest information
indicates S.1248 may come to the Senate floor for
a vote on May 5th. TASH (www.tash.org), SpEdVoters
(www.spedvoters.org), and OCLB (www.ourchildrenleftbehind.com)
are organizing a national "May Day! Save Our Students" call-in
day, Monday, May 3, 2004, to refresh the Senators’ memories
on the issues with the bill.
Our (OCLB, SpEdVoters,
TASH, and more than 100 other organizations) position
remains the same. We are encouraging Senators to
vote NO. We want them to help "Save Our Students
(SOS)". For additional information and a copy of
the call-in flyer and call-in script, please check
out www.spedvoters.org or www.ourchildrenleftbehind.com.
Please forward this call
to action far and wide, and don't forget to call
in.
Thanks.
Dave Wong
c) LATEST
CA STATE BUDGET NEWS: Governor backs off on
home care cut
The Sacramento Bee
http://www.sacbee.com/content/politics/v-print/story/9003908p-9929892c.html
This story is taken from
Politics at sacbee.com.
If feds share cost, the
state can fund program for the disabled.
By Clea Benson -- Bee
Capitol Bureau - (Published April 22, 2004)
The Schwarzenegger administration
wants to back off plans to eliminate a state program
that pays the spouses and parents of disabled Californians
to care for their relatives at home - and is optimistic
that the federal government will pick up part of
the tab instead, an administration official said
Wednesday.
In a major shift, the administration intends
to announce at a Senate budget hearing
today that it will seek permission to use
federal dollars for the $450 million state-funded
program, which serves low-income people
who would otherwise need to live in a nursing
home, said the official of the California
Health and Human Services Agency.
Whether the administration is able to avoid
making the cut will depend on whether the
federal government agrees to carry some
of the costs, the official said. But Gov.
Arnold Schwarzenegger and Health and Human
Services Secretary S. Kimberly Belshé have
been discussing the issue with the Bush
administration since February and are optimistic
that they will get permission to start
using federal Medicaid funds.
If that happens, the service would continue
uninterrupted for the 75,000 people now
enrolled. The legislative analyst, the
Legislature's nonpartisan research arm,
has estimated that the cut would cause
about 27,000 of those people to lose their
services entirely, while others would have
to fire their parents or spouses and hire
strangers to care for them instead.
Schwarzenegger proposed eliminating the
service - known as the In-Home Supportive
Services residual program - in his January
budget. The service covers home care for
Californians who are not eligible for a
similar program that is subsidized by the
federal government under Medi-Cal, the
state's health insurance program for the
poor.
That similar service has 225,000 clients.
Together the two programs have grown by
52 percent in the past five years, making
home care the fastest-growing social service
in the state. Annual costs have almost
doubled in that time, from $1.4 billion
to $2.7 billion.
Federal rules dictate that federal dollars
cannot go to pay spouses and parents to
provide care, and that federal money also
cannot be spent simply to provide help
with domestic tasks or protective supervision
for people with diseases such as Alzheimer's.
So the state and counties have been picking
up the entire cost of care for people in
those situations.
But the federal government does bend the
rules for some states, which currently
use their federal Medicaid dollars to allow
the disabled and elderly to hire relatives
to provide their care.
Advocates for home care praised the administration's
plan Wednesday, but they said they were
still concerned about other cuts to home
care that the administration has proposed.
"
This positive step to secure federal funds
for the residual program is terrific," said
Karen Keeslar, a lobbyist for the public
authorities that run the home care programs
in each county. "We'll view it as a positive
step that they can work out the other things."
In addition to cutting the residual program,
the GOP governor has proposed other reductions
to home care, including cutting the state
subsidy for workers' pay back to minimum
wage of $6.25 an hour.
Currently, the state subsidizes wages,
which are set by the counties, of up to
$9.50 an hour.
Schwarzenegger also wants to repeal a 1999
state law that required counties to set
up centralized authorities for home care,
making it easier for care workers' unions
to organize.
In the next year, that move would save
the state about $95 million.
The disabled and their advocates are planning
to march on the Capitol today to protest
the cuts.
"
It's a real victory, but it's not the end
of this story," said Patricia Yeager, director
of the California Foundation for Independent
Living Centers.
"
When you're still cutting wages, you're
still looking at putting people back into
abusive situations with low-paid workers."
d) New Autism Data: Slight
Decrease May Reflect Mercury Removal from Vaccines
Red highlights
are from TACA super mom – Cherri Cary
This might be the good news we've been
waiting so long for. .I hope the numbers
continue to decrease!
New Autism Data: Slight
Decrease May Reflect Mercury Removal from
Vaccines
[From California autism advocate Rick
Rollens.]
The following is information
just released by the California Department of
Developmental Services (DDS) and reflects the
latest data on autism in California's 35 year
old developmental services system. This information
and more is available at: www.dds.ca.gov/autism
or www.dds.ca.gov/factsStats/Diagnostic_Info.cfm
1. In the past 89 days
(January 5 - April 2, 2004), California added
795 new cases of professionally diagnosed DSM
IV full syndrome cases of autism to it's system.
The 795 new cases in 89 days represents, on average,
11 new children a day, seven days a week. These
new cases DO NOT include any children under the
age of three years old and no children with a "autism
spectrum disorder" like PDD, NOS, Asperger's,
etc.
2. Ten years ago, in
1994, the January to April report documented
173 new cases. Today the January to April 2004
report shows the number is 795 new cases. Ten
years ago there were a total of 5,281 cases of
full syndrome autism in the entire system. Today
there are 24,297 (50% of whom are between the
ages of 3 and 9 years old and 80% under the age
of 17 years old.)
3. For many years autism
accounted for only 3% of the total number of
persons in California's system (which includes
mental retardation, cerebral palsy, epilepsy,
and conditions that have mental retardation as
a component). Ten years ago autism accounted
for 21% of the total number of new cases reported.
Today that number is 55%. Just last year in 2003
that number was 48%. Autism today is far and
away the fastest growing and number one disability
entering California's developmental services
system.
4. Today, nearly half
(48%) of all the persons in the system with full
syndrome autism are between the ages of 3 and
9 years old, with 68% between the ages of 3 and
13, and 77% between the ages of 3 and 17. What
this means is that nearly 8 out of 10 of all
persons in the system with full syndrome autism
are between the ages 3 and 17 years old. The
hordes of autistic children are here. The social
and fiscal disaster that is the autism epidemic
is upon us. God help us.
Now for some
possible good news. For the first time in over 20
years, a consecutive two quarterly (six month) reporting
period (October to January and January to April)
has shown a DECREASE in the number of new cases compared
to other recorded October to April reporting periods...a
6% decrease in 2004 over 2003. This may or may not
be a trend. Time will tell.
As noted earlier, California's
system does NOT include children under the age
of three (3) years old. What this means is that
those children born in 2000 and some in 2001
are just now entering the system.
For those
who are carefully watching the effect on autism rates
and the reduction of the use of certain mercury containing
childhood vaccines which began in 2000, these next
few months to a year or so could be very interesting.
DDS has documented in it's last major report (Autistic
Spectrum Disorders: Changes In The California Caseload:
1999 Through 2002) that it takes up to five (5) years
for a birth cohort year to fully flush all of the
full syndrome cases of autism into the system. The Report also noted
that California's system captures only 85% of all
the full syndrome cases in the state. As horrifying
as the reported epidemic numbers of new cases of
autism in California are, they represent a huge under
representation of the true incidence of autism and
autism spectrum disorders, since at least 15% of
all full syndrome cases and 100% of all autism spectrum
disorders (PDD, NOS, Asperger's, Retts, Fragile X,
etc.) are NOT included in the DDS figures and reports.
(Special thanks to Cherri
for the commentary. And to Rick and Dr. Huff
for the report!)
SafeMinds Calls Upon
ABC News to Make On-Air Correction; 'Investigative'
Report Appears to Lack Even Most Basic Facts
WASHINGTON, April 23
/PRNewswire/ -- SafeMinds -- America's leading scientific
organization investigating the risks that mercury-containing
medical products pose to our children-is outraged by
the biased comments made in last night's Primetime
Live Thursday story, "Out of Darkness," that profiled
a family with three autistic children. When describing
the potential causes of autism, Primetime reporter
Elizabeth Vargas stated matter-of-factly that at one
time vaccines containing Thimerosal were suspected
of being a cause of childhood autism, but "now doctors
don't think so."
"This is not only not
true, but Primetime's assertion flies in the face of
the best current research being performed by the recognized
experts in this field," stated Lyn Redwood, RN, MSN,
NP, president of SafeMinds. At a February 2004 meeting
of the Institute of Medicine (IOM) Vaccine Safety Committee,
a majority of renowned experts offered their research
from the past decade, which continues to show a strong
link between Thimerosal-containing vaccines and neurological
injury like America's autism epidemic in children.
”Primetime's claim that
their story was an 'investigative' report would have
been far more believable if it appeared they had even
attempted to present the whole story," continued Redwood. "They
make the claim that experts do not think that mercury-containing
vaccines are a risk to our children when just last
week a well-known, highly respected medical doctor-Rep.
Dave Weldon, M.D. (R-Fla.)- submitted the bi-partisan
bill, HR.4169, to the U.S. Congress. This bill calls
for the removal of Thimerosal from vaccines specifically
because of the threat it represents to the health of
America's children." Dr. Weldon's bill, cosponsored
by Carolyn McCarthy (D-N.Y.), is in answer to the CDC
and FDA's repeated failure to take formal action on
their own recommendations to prevent the potential
of vaccine-induced neurological injury.
”We are amazed that a
respected hard news operation like ABC's Primetime
Live appears to have failed to check their facts before
making such a blatant misstatement," Redwood said. "Their
mistake has the effect of misleading countless audience
members on the very real threat that Thimerosal-containing
vaccines pose to their children. We therefore call
upon ABC News to make an on-air correction to this
glaring oversight." For more information, visit http://www.safeminds.org.
CONTACT: Joe Giganti,
703-928-9695 Joe@VeritasMediaGroup.com
SOURCE SafeMinds Web Site: http://www.safeminds.org
b) For
the FULL PRIME TIME STORY:
5. TACA ANNOUNCES:
New Parent Seminar Series!
Date: Saturday, June 12, 2004 (in
lieu of the regular TACA Costa Mesa Meeting)
Goals of the Seminar:
After receiving the diagnosis of autism for
a beloved child (or children), parents
typically struggle as they search through
various resources to locate information
needed to help their child the fastest.
The goal of the one-day New Parent Orientation
is to provide parents and caretakers
the “jump start” they need at the beginning
of their journey from parents who have “been
there, done that.” In addition to sage
advice, parents who attend will receive:
an overview of beginning therapies and
biomedical intervention, where to go
for what information, and recommended
first steps. The seminar will be given
by experienced parents who volunteer
their time in providing the education
new parents need.
Note: Seminars will be
available via TACA on a quarterly basis.
Who should Attend?
This one-day seminar is geared for parents
and caretakers of children affected by
autism in Southern California. Content
will be provided in an “overview” presentation
with web and book resource information
for additional details. This seminar
is geared to parents and caretakers new
to the autism journey (less than 6 months)
who have not yet started a behavioral/educational
program or biomedical testing and interventions.
Seminar Agenda
1. Introductions & review of the agenda
2. What’s in a diagnosis?
3. Surviving the first year
4. Biomedical (necessary tests and protocols)
5. Therapies (including: behavioral, academic,
play therapies, social skills, speech & more!)
6. Dietary Interventions
7. Legal issues
8. Organization & Planning 101
9. Questions and Answers
Seminar Time:
9:30am – 4:00pm (refreshments and light lunch to be served)
Seminar Location:
Location is in Costa Mesa, CA by South Coast Plaza. Location
confirmation and address will be sent once registration
payment and information is received.
Seminar Costs:
PARENTS & CARETAKERS: $20 registration and materials
fee required
Non Parents/Professional registration: $50 registration
and materials fee required
How to Register:
Registration fee made payable to TACA
Mail fee to TACA at PO Box 12409, Newport Beach
CA 92658-2409
Registrants MUST INCLUDE: name, email address,
and address.
Available spaces are LIMITED! Be sure to RSVP
@ least 10 days before the seminar!
Babysitting:
Sorry, babysitting and child care is NOT available at these
seminars.
For more information:
Please contact Lisa Ackerman at contact us or
949-640-4401 or www.tacanow.com
Seminar funding and assistance
is provided by TACA (Talk About Curing Autism) – Families
helping Families
6. Dr Jerry
Kartzinel Medical Seminar
Topic: Dr
Jerry Kartzinel – Pediatrician from ICDRC
International Child Development Resources Center - Melbourne,
Florida
COMMON MEDICAL PROBLEMS & TREATMENT OPTIONS
FOR CHILDREN WITH AUTISM
IMPORTANT NEW STUDIES TO BE REVIEWED
Guidelines and suggestions for PARENTS and
Physicians
NOTE: Even if you have seen Dr Jerry BEFORE,
this presentation material changes.
Date: Saturday
June 19, 2004
Time: 9:00am – 1:00pm
(lunch on your own)
Location: Orange
County, CALIFORNIA – (you must RSVP to receive
directions)
Costs: $25
per person BEFORE June 10, 2004
After June 10th and On-Site: $35.00
Scholarship opportunities are available if
needed
Registration: Payment
is $25 per person –
Please make your check
out to ICDRC
Mail to: TACA – Dr
Jerry Seminar
PO Box 12409 Newport Beach, CA 92658-2409
BE SURE TO INCLUDE YOUR
INFORMATION:
Name of each attendee
Email address (confirmation will be sent via
EMAIL ONLY)
Mailing Address, City, State, ZIP Code
Phone Number
Note: This event will sell out. Please be sure
to mail your check early. Thank you. CHECKS
WILL BE RETURNED IF MADE OUT TO THE WRONG PARTY!!
Questions?? tacanow@cox.net
Who is Dr Jerry? http://www.icdrc.org
Babysitting: Unfortunately
no babysitting is available for this event
Please
note:
This
seminar is filling up rapidly. Please be sure
to send in your registration –
IT WILL SELL OUT AND
WE ARE OVER ½ THE WAY THERE!
7. Need more
support? JOIN
US AT COFFEE TALK !
Coffee
Talk is going to be your hour (or so) once
the kids are away at school or busy working
in therapy to chat with other families affected
by Autism. This is an unstructured, casual
meeting environment to chat and talk about
what you want to talk about.
Date: Tuesday,
May 11th
Time: 9:00
a.m. – 10:30 a.m.
Location: Diedrich
Coffee – Costa Mesa
1170 Baker Street (off the 405 freeway
and Fairview Street)
NO
need to RSVP, just join us for a little
coffee, a little talk, no big whoop!
8. April
is Autism Awareness Month:
Remember
to DO SOMETHING to recognize April as Autism Awareness
month! This is not just for your family that is aware
of autism everyday, but for the folks around you!
As more people become aware of autism, the lack of
funding for research and treatment and how it affects
families, THE MORE GOOD FOR OUR FAMILIES THAT WILL
HAPPEN! Go out there and make folks aware!
Special note: we sold out
on the more than 400 nice, metal, autism awareness pins
this past 2 weeks. Thanks to everyone for your support!
I have ordered more pins for the next TACA meeting because
every month is Autism Awareness month!
9. Social
Events (Three Good Ones!)
TACA
Familiy Social Event
Attention all TACA
members! Diane Gallant has worked hard with South Coast
Plaza in arranging FREE CAROUSEL RIDES for children
with Autism and their siblings!!
Come join us for a morning of fun and horse
rides at South Coast Plaza!
Upcoming
Dates:
Saturday, May 15th
Saturday June 26th
Saturday July 24th
Times: 8:30am-9:30am
(BEFORE the mall opens)
Local: South Coast Plaza by
the carousel (NOT the Crystal Court carousel!)
Costs: FREE!!!!!!!!!
Park: Park by ZTejas Restaurant
and the Bank of America ATM’s off Bristol
Note: Kids can ride as often
as they would like and based on availability.
NO NEED
TO RSVP! JUST COME AND PLAY!!
YOUTH
EXPO Where Kids Rule!
Dates: April 30 - May 2nd
Location: Orange
County Fairgrounds
Costs: FREE
ADMISSION 7 PARKING
Things to see and do:
•
Jazz Festival
•
Talent Search
•
Petting Zoo
•
Amusements
•
Exhibitors
•
Pony Rides
•
Free Arts & Crafts
•
Girl Scouts
•
4-H Clubs
•
O.C. Science and Engineering Fair
•
Lots of Great Food!
Inland Regional Center
Resource Library (909) 890-4794 - 1855 Business Center
Drive.
For Family & Friends, Professionals,
Educators & Students and Members of
the community to increase public awareness
of Developmental Disabilities. Check out
the Web Site: www.irclibrary.com E-mail
address: irclibrarian@yahoo.com
Autism
Society of America Orange County, Fiesta Educativa
and Project SEA presents Abierto 2004 – The first
Latino benefit event for Autism
Autism Society of America
Orange County, Fiesta Educativa and Project SEA will
be hosting a benefit event Thursday June 17, 2004
at The Mayan in downtown Los Angeles, California.
Performers and special guests will bring forth a
night of awareness, joy and excitement for all who
attend.
LOS ANGELES, CA (PRWEB)
April 14, 2004 -- Autism Society of America Orange
County, Fiesta Educativa and Project SEA will host “Abierto
2004” Thursday June 17, 2004; a benefit event in
support of Latino families in Los Angeles and Orange
County areas affected by Autism.
This will be the first
event that targets the Latino Autism community from
music, dance, performers and style. Community leaders
and performers will make this an event to remember
and all for a great cause. The location is The Mayan
in downtown Los Angeles which is worldly known as
a “unique mystical dynamic venue.” Live performance
will be provided by Tribäl.
Event proceeds will
provide family training scholarships, continued community
outreach and continued family social event programs
for the Latino community.
Abierto is Spanish
for “Open”; and that is the emphasis of this event.
To open the doors of understanding and bring forth
awareness of a disability that is robbing our children
and their families. By opening the doors, we can
better understand the needs of our children and the
dilemma’s their families encounter daily. Our emphasis
is a night of laughter and joy, but also, awareness
and education for all of those who attend.
Autism is at epidemic
proportions. Twenty-five years ago, autism was diagnosed
in about 1:10,000 people. In the United States the
number of individuals with autism is about 1.5 million
or 1:166 with the number rapidly growing Autism is
an epidemic few can continue to ignore.
Press inquiries, interview
request or other queries should be sent to Gil Murillo
at gmurillo@projectsea.org or direct at 562.366.9700.
Date/Time: June 17,2004 (Door
open at 7:30PM)
Location: The
Mayan 1038 South Hill Street Los Angeles,
CA 90015 (213) 746-4674
Admission: $15.00
Ticket Contact: For
tickets, contact C. Chavez at (323)578-6778
or email at cchavez@abierto2004.com
Website URL: www.abierto2004.com
10. Upcoming
Fee-Based Conferences & Seminars
in Southern California:
Autism Conference announced
for Southern California by CASD.
Location: Long Beach – May 14-16
Watch web site for speaker list: http://www.casdweb.org/index.htm
If you have questions or would like more information,
please email the director at kazuko@grandecom.net.
DAY 1: May 14th
7:00 am Registration
and Exhibitor Viewing
8:00 am Welcome
Speech CASD Executive Board Member
8:30 am Keynote
Speech Sheila Wagner, M. Ed. - Educating Students
with ASD in an Inclusive World
9:30 am Presentation
Bryna Siegel, PhD. - Autistic Learning Disabilities’ (ALDs)
10:30 am Q and A / Break
10:50 am Presentation Richard
Laitinen, Ph.D. - Fluent Behavior in EducationalProgramming
11:50 am Presentation Sally
Brockett, MA - Do You Hear What I Hear?”
1:00 pm Lunch CASD
2:00 pm VIP
Presentation Robert Koegel, Ph.D. -Motivating Children
with Autism through Lynn Koegel, Ph.D. Pivotal
Response Training
3:30 pm Presentation
Mary Bolles, MA - Non-invasive and non-drug-freeintervention
4:45 pm Presentation
Vince Redmond, MA - The C.A.R.D. program: Procedures
and Curriculum
5:30 pm Presentation
Sebastien Bosch, Ph.D. -The Behavioral Approach
CommunicationSkills
6:15 pm Q and
A for Day 1 Speakers
Day 2: May 15th
7:00 am Registration
and Exhibitor Viewing
8:00 am Welcome
Speech
8:15 am Presentation
Bruce Bothwell, Esq. -Special Education Law; your
rights andresponsibilities
9:00 am Keynote
Speech William Shaw, Ph.D. -Biological Evaluation/Treatment
forAutism and PDD
10:00 am Q and A
/ Break
10:30 am Presentation
John L Kucera M.D. -Family Physician from Colorado
Springs
11:30 am Presentation
Woody McGinnis, MD -Therapy for Oxidative Stress & Autism
12:45 pm Lunch Andy
Waters, Esq. -The State of Vaccine Litigation &Autism
1:45 pm VIP
Presentation Aristo Vodjani Ph.D. -Director of
Immunosciences Lab,Biomedical Testing
2:45 pm VIP
Presentation John L Wilson, Jr. M.D. -Environmental
Medicine and the Treatment of Autism
3: 35 pm Q
and A / Break
3:50 pm Presentation
Joachim Hallmayer, MD -Neurobiology of Autism/PDD,
Stanford University
5:50 pm Presentation
Andrew Clarke -CEO of A2 Corporation; Allergy Safe
Milk?
6:40 pm Q and
A For Day 2 Speakers
Day 3: May 16th
7:00 am Registration,
Exhibitor Viewing and Opening Speech 8:15 am Presentation
Lisa Ackerman -Founder of TACA, Parent’s Success
Story
9:00 am Keynote
Speech Kendal Stewart, MD -The NEC Approach to
Treating Autism
10:00 am Q and A
/ Break
10:30 am Presentation
Andrew Cutler, Ph.D. -A through Z of Heavy Metal
Detox
11:30 pm Presentation
Karen Slimak -Environmentally Safe Products for
children with ASD
12:45 pm Lunch Immunosciences
Lab., Inc- Conference Executive Sponsor
1:45 pm VIP
Presentation William Walsh, Ph.D. -Director, Pfeiffer
Treatment Center; MT protein
2:45 pm VIP
Presentation Claudia Miller, MD -UTHSCSA; The nature
of chemical sensitivity in Autism
3:45 pm Q and
A / Break
4:00 pm Presentation
William Shaw, Ph.D. -Yeast, Bacteria, and Nutrition
in autism
5:00 pm Presentation
April Oakes -Vaccination in Autism
5:30 pm Q and
A for Day 3 speakers
We have been blessed with giving care to some very
special people. These children need our best efforts.
We need to keep the momentum up and keep challenging
each other to further the understanding of the
underlying issues. Together, we can work MIRACLES.
CASD appreciates so much for all of CASD speakers
and sponsors. Go to www.casdweb.org to get registered
today! Long Beach Airport has a direct flight from
most of major cities and is also price friendly.
Or fly to LAX International Airport! We will make
a difference! We are looking forward to seeing
you again or meeting you all at the Conference!
With Warmest Regards,
Kazuko A. Irie-Curtin, Center for Autistic Spectrum
Disorders, Inc, 501c3 non-profit organization
Request Conference Flyer!!! E-mail to kazuko@casdweb.org
or Visit: www.casdweb.org
Autism One
Conference – MAJOR conference in
CHICAGO, IL. Yes, that is far, but the speaker lineup
and content is AMAZING. Largest amount of speakers
and variety of topics! For more details: www.autismone.org Dates:
May 27-30, 2004. DETAILS:
The Most Comprehensive
Conference on Autism Ever Assembled Autism One 2004,
the most comprehensive conference on autism ever assembled,
will be held May 27 - 30, 2004, in Chicago. It is a conference for parents and
professionals for the care, treatment, and recovery
of children with autism. For more information please
visit
our web site at http://AutismOne.org.
The conference organizers are themselves
parents of children with autism. Parents are, and
must remain, the driving force of our community.
The issues are too sacred and the stakes too high
to delegate to outside interests.
Keynote Address - Congressman Dave Weldon,
MD Congressman Dave Weldon, MD will deliver
the keynote address. Dave Weldon, a physician by
training, has been for the past several years,
and continues to be, one of the autism community's
staunchest supporters on Capitol Hill.
More than 100 Presentations
- World's Leading Authorities
Autism One features many
of the world's leading researchers, educators, practitioners,
agencies, and parents. Featuring over 100 speakers
including such experts as Dr. Boyd Haley, Dr. William
Walsh, Dr. Jeff Bradstreet, Dr. Andy Wakefield,
Dr. Sudhir Gupta, and Dr.William Shaw among others.
Learn about the latest treatments, your rights
when dealing with school districts, the best ways
to handle insurance companies, how to petition government
agencies, along with a host of other pressing issues.
In addition, leading parent-advocates and autism
organizations will be on hand to present and inform.
TASK - IEP
RIGHTS AND STRATEGIES
Date: May 5, 2004
Where: TASK, 100 West Cerritos Ave., Anaheim, CA
92805
When: 8:30 am – 1:00 pm
Contact Info: 866-828-8275
Fees: $25 / half day, $35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – Transition
to PUBLIC SCHOOL
Date: May 10, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30am – 1:00pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – IEP
Rights and Strategies
Date: May 15, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30 am – 4:30 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – Basic
Assistive Technology Information
Date: May 18, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30 am – 1:00 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – BASIC
LEGAL RIGHTS
Date: May 25, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30 am – 1:00 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – Transition
to PUBLIC SCHOOL
Date: June 2, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 1:00 pm - 5:00 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – IEP
Rights and Strategies
Date: June 5, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30 am – 4:30 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – Software
for Younger Children
Date: June 15, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30 am – 4:30 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
TASK – BASIC
LEGAL RIGHTS
Date: June 16, 2004
Where: TASK, 100 West Cerritos Ave, Anaheim, CA
92805
When: 8:30 am – 1:00 pm
Contact Info: 866-828-8275 - Fees: $25 / half day,
$35 / full day, $45 / two-day
More information about this course can be found
at http://www.taskca.org.
Autism/Asperger's 2004
CEUs for ASHA & APA
Tony Attwood,
Ph.D. offers the 2nd in his Asperger's Workshop
series, going in-depth on "Behavior & Anger
Management, Challenges of Adolescence, Pre-Teen & Teens,
and New Perspectives on Turning Special Interests
into Positives."
8 am - 4:30 pm
Jul 31, San Bernardino Prof.$135 (group rate Prof
$115- Student/Family Member $110 (Fam. group rate
$95) Person w/ ASD $75
Please see web site for up-dates.
Future Horizons 800-489-0727 www.FutureHorizons-autism.com
and email: info@FutureHorizons-autism.com
DAN! (Defeat
Autism NOW!) CONFERENCE UPDATE:
Fall DAN! Los Angeles, CA - October 1-3 - Watch www.autism.com/ari for more details!
Well, we started something
new in December with Jeff – Karate, or to be correct
here, Shaolin
Kempo (this is similar style
to Tae Kwon Do). Like every parent, I always have visions
of my son doing “boy things.” Specifically, anything
that is sports-related. Group sports did not seem like
a good idea due to the coordination efforts, auditory
processing requirements in a group setting / back ground
noise issues, and down time experienced during practice
and games – which could lead to more unfocused time.
So we looked to Karate to start. (Note: We will try
the group sports in the next 6-12 months.)
Jeff’s older sister Lauren
started Karate when she was 11 with many carcasses
of failed sports equipment left behind, including (but
not limited to): ballet, soccer, baseball, basketball
and countless others. So when Lauren asked me for Karate,
I told her we would try, but find the cheapest and
closest option because (sigh) I thought this would
go by the wayside, too, and another pile of expensive
equipment would be left in the garage to gather dust.
Well, Lauren still does Karate 10 years later and enjoys
a 2nd degree black belt. Thankfully, she can hold her
own in many respects and most likely cause bodily harm
to anyone asking in over a dozen different ways. (This
gives parents a bit of relief knowing she is on her
own and doing well – thank you very much! I feel sorry
for the guy that tries something that is un-welcomed!)
So for Jeff, karate it
is! Fast forward to December 2003 and we signed up
at United Studios of Self Defense in Huntington Beach,
off Magnolia and Atlanta, with Lauren’s boyfriend – Ryan.
We choose this dojo for that reason – Ryan understands
Jeff (and autism) and Jeff worships Ryan. This combination
has proven to be all powerful.
Jeff has learned in weekly
one-hour private lessons over the past four months
dozens of blocks, kicks, punches and his first DM (Defensive
Maneuver), rolls, jumps and of course, our favorite, “half
moons.” The reason why it is our favorite is because
Jeff says in a sing-song voice, “half-moon, half-moon, half-moon…” as
he performs this step throughout the dojo. This all
brings a big smile to my face. I can be found singing
this around the house while doing laundry.
Not only is Jeff learning
karate, and moving forward on all of his OT (occupational
therapy) goals faster with the added weekly private
karate, he is gaining more confidence. He is
so proud when he performs something requested by his
Sensei (teacher), Ryan. And he loves learning something
new. I have to say I love seeing him in his Karate
uniform. He stands taller and smiles when he finishes
putting it on.
I am proud to say Jeff
earned his first belt this past weekend. He is now
a “yellow belt.” Our goal is to put Jeff in the typical
kid class instruction now that he has the basics. I
will keep you all posted.
The next steps for Jeff?
Who knows??! But every time we raise the bar or introduce
a new challenge to him – Jeff is there to meet it with
a smile. (Did I say I love this kid?!)
Hugs, thanks,
and be SAFE,
Lisa A. Jeff's mom
Web
Page for TACA Group: www.tacanow.com
Talk About Curing Autism
(TACA) provides general information of interest to
the autism community. The information comes from
a variety of sources and TACA does not independently
verify any of it. The views expressed herein are
not necessarily TACA’s. TACA does not engage in lobbying
or other political activities.
P.S. TACA e-news is now
sent to 1,143 people!
(This number represents families – 95%,
and the rest are professionals.)
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