E-News
April 2004
Here is your update on
the TACA (TALK ABOUT CURING AUTISM) Group for April
2004 - #1. As always, email your thoughts and/or questions.
I want to make this e-newsletter informative for you.
Let me know your thoughts on how I can improve it. To
read this newsletter on line – please click here: http://www.tacanow.com/enewsletters_archive/April_2004_1.htm
IF this email is NEW
to you and you don't recognize the name... WELCOME! These
emails happen two to four times a month for the Southern California autism support group called TACA. As always, email your thoughts and/or questions. I want to make this e-newsletter informative for you. Let me know your thoughts on how I can improve it.
Talk About Curing Autism
(TACA) provides general information of interest to
the autism community. The information comes from a
variety of sources and TACA does not independently
verify any of it. The views expressed herein are not
necessarily TACA’s. We focus on parent information
and support, parent mentoring, dietary intervention,
the latest in medical research, special education law,
reviews of the latest treatments, and many other topics
relating to Autism. Our main goal is to build our community
so we can connect, share and support each other. TACA
has an official web site at: www.tacanow.com
In This
Month's Edition of TACA e-news:
- Next TACA Meeting Information
- Upcoming TACA Costa
Mesa schedule & other TACA meeting schedule info:
April – July 2004
- General News:
a. Scientists Identify Gene Linked to Autism
b. State bills that could AFFECT FAMILIES WITH
SPECIAL NEEDS CHILDREN
c. Want to hear directly how California State Budget
Cuts could affect you?
d. Behind the (State) Budget Pleas: Waste. Welfare,
Disability programs shouldn’t get pass because
of who they help
- Vaccine News
a. Potential Federal Legislation S. 2207
b. US Won’t Alert Parents, Doctors on Mercury in
Flu Shots for Kids
- Upcoming RALLY in Sacramento
- Dr Jerry Kartzinel
Medical Seminar Information
- Need more support?
MORE Coffee Talk!
- APRIL = Autism Awareness
Month AND an upcoming radio program on AUTISM
a. Want an AUTISM AWARENESS PIN FOR APRIL?? Attend
a TACA meeting for this fundraiser and AUTISM AWARENESS
MONTH!
- Passover offers some
Gluten Free/Casein Free diet offerings!
- Upcoming Conferences & Seminars
- Social Events
- Personal note
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1. Next TACA
Costa Mesa support group meeting
|
Date:
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Saturday, April 10th
(always the 2nd Saturday of each month)
|
|
New Time:
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1:00 pm - 4:00 pm
|
|
Topic:
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Managing Difficult Behaviors
and How to Eliminate them!
By Dr. Sebastien Bosch – CARD (Center for Autism & Related
Disorders)
|
|
Place:
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VINEYARD NEWPORT CHURCH - 102 East Baker Avenue - Costa Mesa
(I am happy to report the church is back! With
the new time, consider it our new home!!)
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|
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(Please do not contact
the church for meeting details. They have graciously
offered use of their facility, but are not affiliated
with TACA.)
And remember, we are still a non-faith based group!
|
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Directions:
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405 FWY South, Exit Bristol
Right on Bristol
Left on Baker
Go under FREEWAY.
The Vineyard Church is
on the corner just after the freeway - turn left
onto the freeway access road, make FIRST right
into the Vineyard's parking lot.
|
2. Upcoming
TACA Costa Mesa Meeting
Schedule
All meetings
at the Vineyard:
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May 8, 2004:
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Dr Christine Majors – Child
Neuro-psychologist
- What is in a test and outside evaluations? Why are they
important? - Where should you start? And important observations
about school district and Regional Center testing.
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June 12, 2004:
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Speaker being confirmed
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June 19, 2004:
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Dr Jerry Kartzinel: The
latest in Biomedical Intervention for Autism Spectrum
Disorders ($25 fee and reservations required – more
info in MARCH).
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July 10, 2004:
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Neurology & Autism:
The latest findings in neurology and why genetics play
an important role Sara Spence M.D., Ph.D. – UCLA Pediatric
Neurology Director
|
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Much more is being planned
for 2004! Stay tuned!
|
TACA
has FIVE So. California meeting
locations:
1.
|
Costa
Mesa:
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2nd Saturday of each
month (info in item #1 for meeting subjects and details)
|
2.
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Mission
Hills
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(the Valley, man!): NEW
location! 1st Sunday of every month, 7-9 p.m.
Location: Jumping Genius – 22750 Roscoe Blvd., West Hills (the corner of
Roscoe Blvd. & Fallbrook Ave.) ... -- For more info: contact us
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3.
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San
Diego:
|
4th Tuesday evening – 6:30- 8:00 p.m. Contact us
- April 27 - To Be Announced
- May 25 - Dr. Mitch Perlman: "Independent Testing
and Evaluations"
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4.
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Corona:
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3rd Saturday – 1:30–4:30 pm - Corona Library. For more info: contact us - April 17: DAN! Doctor: Dr. Ken Williams
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5.
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Torrance:
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3rd Monday of each month
at Whole Foods Market on PCH in Torrance – 6:30 - 9:00 p.m. For more info: contact us
- April 19: Dana Gorman, a Parent, on Environmental
issues, Diet, Energy Medicine & Applied Kinesiology
- May 17: Dr. Slezak, Naturopath, will talk about
Brain Protocol for Autism
|
3. General
News:
a) Scientists
Identify Gene Linked to Autism By Malcolm
Ritter, The Associated Press
NEW YORK (AP)
- Scientists say they've identified two variants of a single
gene that might raise a child's risk of autism by twofold or
more.
The variants are fairly common
and can't bring on the disease by themselves, the researchers
said. Scientists believe several genes, perhaps five to 10,
have to work together to produce autism.
Previous studies have identified
variants in other genes that might contribute to the disease
but none has been proven to do so. Finding autism-related genes
might help scientists develop treatments for the perplexing
disorder.
The new work provides strong
evidence that the gene influences susceptibility to autism,
but more studies will be needed to confirm the link, said lead
study author Joseph Buxbaum of the Mount Sinai School of Medicine
in New
York.
``It looks like they might
have something there ... but it's a bit too soon to say definitively,''
said Susan Santangelo, a Harvard expert not involved in the
study.
The study appears in the April
issue of the American Journal of Psychiatry. Autism, which
normally appears by age 3 and usually in boys, interferes with
a child's ability to communicate and interact with others.
Affected children might not respond to their names or even
look at other people.
The new study looked at 411
families, analyzing DNA from more than 2,000 people. Of those,
720 had autism.
The study found that the two
gene variants had been inherited by family members with autism
more often than one would expect by chance. That implicates
the variants in the disease.
The gene is involved in providing
energy to brain cells, so variant versions might hamper the
operation of those cells, the researchers said.
On the Net: www.cdc.gov/ncbddd/dd/aic/about/default.htm
b) State
bills that could AFFECT FAMILIES WITH SPECIAL NEEDS CHILDREN
I faxed the attached letter
to all Assembly members on the Education Committee regarding
the latest series of attacks from Lynn Daucher regarding California
Special Education Law.
I have already received three
phone calls last week from Assembly members that are interested
in meeting with me to discuss the damage these bills will cause
if passed.
Please take the time to copy
and paste some of my text and include your own personal issues
about these four bills.
Three of the four bills, as
some and/or most of you may know, are going to be heard on
April 14th before the Education Committee.
We do have time to educate
and influence an Assembly vote. I know there is a lot going
on politically but we have to keep our eye on the ball and
right now CA ed code demands our attention. If you think it
is difficult developing an IEP for your child with autism in
the current special education climate, it can and will get
worse if these bills pass. In fact, a free appropriate public
education for most individuals with autism would be virtually
IMPOSSIBLE if these bills pass.
PLEASE take the time to voice
your opposition.
The Autism Education Network's
web site is finally here...www.autismeducation.net. I am happy
to post letters for parents to quickly and easily download
in order to voice opinions. Submitting letters via fax is the
most efficient way to be heard and/or calling Assembly members
directly.
Here is
the fax list of Assembly members on the Education Committee:
Jackie Goldberg
fax: 916-319-2145
Alan Nakanishi
916-319-2110
Mark Wyland
916-319-2174
Bonnie Garcia
916-319-2180
Fran Pavley
916-319-2141
Gene Mullin
916-319-2119
Manny Diaz
916-319-2123
Loni Hancock
916-319-2114
Sarah Reyes
916-319-2131
Carol Liu
916-319-2144
Rebecca Cohn
916-319-2024
Below, I copied my letter into
the body of this email just in case you can't open the Word
document for one reason or another.
Michele Waterman
Executive Director
Autism Education Network
408-558-9404 office
408-472-3676 cellular
----------------------letter
faxed to Assembly below-------------------
March 30, 2004
Dear California Assembly,
Education Committee:
I am the parent of a four-year-old
with autism and a resident of Campbell. I
am also the founder and executive director of the Autism Education
Network, a 501(3) (c) nonprofit organization.
I am writing to express my
strong opposition to several special education bills specifically
AB2359, AB2360, AB2361, and AB2362.
I am very concerned about the
motives behind these bills. The purpose of state and federal
law regarding special education is to protect the rights of
students with disabilities not help school districts become
less accountable.
I strongly encourage each and
every one of you to take the time to understand how these bills
will adversely affect all students with disabilities receiving
special education services through California public
schools if passed. Unless you have a child in special education
and understand the intricate procedures regarding federal and
state law related to developing an individualized special education
plan for a child with a disability, there is truly no way to
understand the detrimental impact of these bills.
I would like to set up a ten
minute appointment with each and every one of you to explain
how these bills will damage your credibility with many of your
constituents should you vote yes for these bills. I know this
is an election year and I am certain that millions of voters
are watching how legislators vote on special education issues
and social services which affect the disabled community.
Finally and most importantly,
none of these bills actually fix any special education problems.
All off these bills, however, help school districts evade their
legal obligation to provide an appropriate public education
for disabled students including autism by making it almost
impossible for a parent to seek appropriate placement in a
nonpublic agency or nonpublic school if the district cannot
appropriately address their child’s exceptional and complex
needs and/or make it impossible for a parent to receive reimbursement
for legal fees should a parent prevail in a due process hearing.
Today, there are 1.5 million
individuals with autism in the United States. Over 350,000 of which receive
public special education services, 25,000 of which reside in California. The
autism rate in the public education system jumped 1,354% in
the period from 1991– 2001.
The autism epidemic is unequivocally
straining special education resources in California but
reducing parent’s access to legal counsel and giving school
districts second chances to fix problems which they are unequipped
to fix is not the answer. The average cost for an appropriate
specialized education for a student with autism is $40,000.00
per year per child through a nonpublic school or agency.
If California wants
to save money on administrative hearings, legal expenses, and
the cost of placing an autistic child in nonpublic schools,
then California needs
to get really serious about incorporating effective and appropriate
methods of instruction in public schools. Research proves that
early, effective interventions reduce the cost to serve this
population by two-thirds over their life span.
Until we find a cure, education
is our best hope.
Sincerely,
Michele Waterman
Executive Director
mwaterman@autismeducation.net
c) STATE
Developmental Disability Community Funding is under attack!
Services will
be eliminated or drastically reduced
unless you take a stand and
prevent it from happening!!
Community Action Meetings scheduled
for 7 p.m. on Thursday, April 8, 2004
Come and hear about Governor
Schwarzenegger’s devastating proposals and what action
each of you can take to prevent this.
Join us for an open discussion
of the Governor’s budget proposals and other current legislation
for 2004-2005. We’ll discuss local and statewide advocacy and
networking efforts, including strategies and timelines for
action and steps you can take! It is imperative that we tell
the decision makers about the devastating results of these
proposals. A question and answer period will be included so
that YOU have a chance to discuss the areas that are of greatest
concern to you and your family.
This event is open to individuals
with developmental disabilities, family members, service providers,
support staff and anyone and everyone who is concerned about
this attack on the civil rights of individuals with disabilities.
While our community was able get the Governor to admit his
error in proposing to suspend the Lanterman Act last December,
his administration is at it again, just in a different way.
The Community Action Meetings
will be held at Jay Nolan’s offices in Mission Hills. Please RSVP to Sherlene Allen
(818-361-6400 x151) so we can make sure we have enough
space and also let us know if you need any accommodations.
If you would like to be added to our Community Action Alert
Email list, please send an email to sherlene@jaynolan.org.
d) Behind
the Budget Pleas: WASTE. Welfare, disability programs shouldn’t
get pass because of who they help
By
RAY HAYNES - Republican assemblyman from Murrieta
What a field
day for the heat. A thousand people in the street. A-singin'
songs and carryin' signs. Mostly say, "Don't you dare cut
any of our programs!"
With apologies
to Buffalo Springfield, the annual
summer budget fight has started early in Sacramento. Welfare mothers,
students and many others are showing up at the Capitol
to beg us lawmakers to give them your money.
Except their
stories are mostly false. Most of these people are scared
into protesting by people who make money from the system.
Welfare bureaucrats, union bosses (who profit from the
dues public employees pay) and "service providers" profit
from the system, sometimes making handsome profits, and
they want the flow of money to continue. A program becomes
their excuse to profit at taxpayers' expense. Worse, they
threaten to deprive people who really are hurting in order
to protect their $100,000 annual salaries.
Take the Department
of Developmental Services. DDS deals with developmentally
disabled people - some who need a wheelchair, some with
mental challenges, all relying upon government to help
them. California provides many
services to those suffering these disabilities. And every
time anyone suggests we look at these services, the craven
administrators try to protect their phony- baloney jobs
by hiding behind the wheelchairs.
This year,
the governor proposed changes in how the state deals with
the disabled, so the Capitol is filled with very frightened
people in wheelchairs. But of course no one wants to throw
them out of their wheelchairs. They are being scared by
the profit-fattened administrators who are the real targets
of the governor's spending
controls.
Consider some
facts: In 1998-99, California spent $9,500
on each person with a disability served by a state Regional Center. Today, it
is $13,400. In addition, in '98-'99, the state spent $124,000
per person who has to live in state-run disability facilities,
called Developmental Centers (DCs). Today, it is $205,000.
In addition, we are running a 20 percent vacancy rate at
the DCs. We could close down two or three DCs, deliver
the same quality service, and save money.
As for Regional
Centers, they are a mess. One lobbyist privately admits
that of the 21 Regional Centers, seven are adequate, seven
are bad and seven are horrible. They have become dominated
by the "providers" who profit from the system. They've
gone from service center to profit center - at whose expense?
The disabled. “Providers” have approved "services" such
as a pool (built at taxpayer expense)at a house supposedly
to help a disabled person, but, of course, everyone else
uses it, too. They have approved house additions at taxpayer
expense, and have talked about approving expenses for "dolphin
therapy": swimming with dolphins, like you can do in Hawaii for $300 per
hour.
Another DDS
program recently attracted a lot of negative attention.
It was discovered the DDS and the local regional center
were attempting, through a "Sex Offenders Active Reorientation
System," to place four sex offenders together in a home
in a Southern California desert
community. They say these sex offenders are no danger to
the community. If that is true, why would they need full-time
supervision
and security costing almost
$600 per sex offender per day (total cost: more than $800,000
to house these four for a single year)?
Cutting these "services" and
controlling bureaucratic expenses won't throw anyone out
of his wheelchair. It may cost a bureaucrat or two their
jobs. And it is these bureaucrats who draw up and approve
their own budgets. Somehow they just can't see the wisdom
of eliminating their jobs, so they scare already frightened
disabled people into protesting. It is shocking; it is
distressing, but it is overdue.
The governor
hasn't budged, so the battle is joined. Stay tuned to see
if we can actually control spending on these programs,
or if the bureaucrats who profit from the system can dodge
the budget bullet again by hiding behind the wheelchairs. Wednesday,
March, 24, 2004
If you would like
to Contact Mr. Haynes: (if you like or dislike this article,
please contact Mr. Haynes!)
Assemblyman Ray Haynes
Assembly District 66 - Proudly Serving: Riverside, Temecula,
Murrieta, Lake Elsinore
Capitol Office
Phone: (916) 319-2066
Fax: (916) 319-2166
Email: Assemblymember.haynes@assembly.ca.gov
IMPORTANT NOTE: Views expressed
by authors do not necessarily reflect the views of TACA.
4. Vaccine
News
a) POTENTIAL
FEDERAL LEGISLATION S. 2207
Ladies & Gentlemen:
The Senate is making another
attempt to deny justice to parents and children who have suffered
an adverse reaction to a mandatory pediatric vaccine. Sen.
Frist will be pushing S. 2207 ASAP. We must stop it in its
tracks. Please help.
For the third time in less than a year - and for the second time
in just the past 40 days - the U.S. Senate next week will be
voting on a bill to cap damages and limit contingent fees in
medical malpractice cases and in product liability cases involving
drugs and medical devices, including vaccines.
Contact your Senators now; please urge them to oppose this unwarranted
attack on the rights of patients and families:
http://action.peopleoverprofits.org/action/index.asp?step=2&item=16841
The Senate will be voting on S.2207, a bill cynically named the "Pregnancy
and Trauma Care Access Protection Act." It was introduced only
last week and sent directly to the Senate Floor, without going
through Committee. It would inflict a sweeping range of tort
restrictions, including a $250,000 cap on non-economic damages,
in cases involving ob/gyn goods or services, and in cases involving
goods or services relating to emergency or trauma care.
The bill that failed in the
Senate last month would have imposed all the very same restrictions
in ob/gyn cases that this bill would impose, but now emergency
or trauma care cases - cases involving persons suffering from
an emergency medical condition - have been added to the scope
of the bill.
Enough is enough! Please help us defeat this bill. The vote is
presently scheduled for April 7th.
Yesterday,
the AMA received a pep talk from the Sen. Frist, who
pledged to keep working on behalf of these bills. The
medical community is extremely energized and very well
organized on this issue. Doctors are relentlessly lobbying
their Senators, calling them constantly, visiting them
every week, even waiting for them as they de-plane at
airports on trips home.
WE
MUST MAKE CERTAIN THAT SENATORS HEAR FROM US, TOO! Doctors
cannot have the field to themselves. This is serious
stuff. In addition to capping damages, S.2207 would impose
a whole host of restrictions in ob/gyn and emergency
care cases, including:
• Caps on contingent fees;
* The near elimination of punitive damages;
* Limitations on calling expert witnesses;
* Product
liability protections for manufacturers and sellers of drugs
and devices;
* Elimination of joint and several liability.
• Please, Please, Please make
certain that your two United States Senators hear from you today.
As always, thanks for all you do. Together, we can prevail again!.
Peacefully,
Jeff Sell
JZSell@JZSLAW.com
http://www.JZSLAW.com
b) U.S. Won't Alert
Parents, Doctors on Mercury in Flu Shots for Kids
The CDC says it sees no harm
in the preservative thimerosal. Advocacy groups attack its
stance.
By Myron Levin
Times Staff Writer
April 1 2004, 7:22
PM PST
Hundreds of thousands of infants
and toddlers who get flu shots starting this fall could be
exposed to a mercury-laced preservative that has been all but
eliminated from other pediatric vaccines due to health concerns.
The complete article can be
viewed at:
http://www.latimes.com/business/la-fi-vaccine2apr02,1,1037077.story?coll=la-home-headlines
5. Upcoming
Rally In Sacramento
One Voice
for Autism Rally
Place: North
Steps of the California State Capital Building
Time: 12 noon - 3
p.m., April 17th, 2004
For more information, contact: Valerie
Jacobsen, Phone 925-371-8266,
e-mail, jacobsen5@msn.com or Barbie Dunham e-mail ctlautism@aol.com
Unlocking Autism, a member
of the California Autism Coalition, will sponsor the One Voice
for Autism rally on April 17th, 2004, in Sacramento, California. The
purpose of the event is to unite the Autism community, empower
parents, caregivers and service support staff and raise awareness
of Autism Spectrum Disorders for Autism Awareness Month, which
is the month of April.
Unlocking Autism will be displaying
the Open Your Eyes Project, which consists of a portion of
the 8 feet high California picture
boards representing the amount of children diagnosed to that
point in April with Autism. The picture boards have been on
display throughout the country, including Washington DC. When
all boards from all states of the country stand together, they
spread the distance of four football fields.
In 2003, according to the latest
figures released by the California Department of Developmental
Services (DDS), California experienced
another dramatic increase in the number of new children professionally
diagnosed with the most severe form of autism. In California there
are now over 25,000 children afflicted with this life long
disability, with 13 new children on average being diagnosed
daily. Autism now accounts for 70 percent of new intakes to
the Regional Centers . This disability used to be the third
most common developmental disability but now is becoming the
most common developmental disability among children under the
age of 10.
The figures reported by DDS
DO NOT include individuals with PDD-NOS (Pervasive Developmental
Disorder not other wise specified), Asperger’s, or other autism
spectrum disorders. This leads to the conclusion that the increase
in cases is NOT due to a change in diagnostic criteria to include
a broader range of autism related disabilities.
In the state of California, services
families receive through the Regional Centers and
school districts are under threat because of the budget crises.
Threats include cuts to the In-Home Supportive Services (IHSS),
Medi-Cal reductions, Purchase of Service Standards which will
eliminate critical services, a service provider rate freeze
and cuts to Special Education programs that serve children
with autism.
For 2004, the federal government
has allocated only $54,000,000 dollars to autism research and
treatment, a small portion of what should be funded. The cost
of caring for an individual with autism throughout their lifetime
can easily exceed a million dollars.
The cause of autism has not
been officially recognized but theories range from genetic
causes to harm caused to the neurological system during gestation,
birthing difficulties, environmental toxins and vaccine preservatives.
Thimerosal, a vaccine preservative, is a neuro-developmental
toxin which contains mercury. There is a significant body of
research that links thimerosal in vaccinations with autism.
According to Valerie Jacobsen, a California State Representative
with Unlocking Autism who is one of the planners for this year’s
event, "My son was no longer the same baby after receiving
his 3rd round of Vaccinations. I know in my heart what happened
to my son, and the research I have seen to date backs up my
suspicions. This rally is not about vaccinations, but you cannot
speak about Autism without speaking about cause since the numbers
are increasing so drastically."
Autism is at epidemic proportions.
Twenty-five years ago, autism was diagnosed in about 1:10,000
people. In the United States, the number of individuals
with autism is about 10 million, or 1:166, with the number
rapidly growing. Autism is an epidemic few can continue to
ignore.
Join our
rally on April 17th to bring attention to autism and
to support families afflicted
with this lifelong disability.
April 18th, the California
Autism Coalition will hold a general membership meeting. For
more information on agenda and location, please contact Marcia
E. at MarderE@aol.com
April 19th, California Disability
Community Action Network will sponsor an event addressing the
possible budgetary cuts to the DDS system. For more information,
please contact Marty Omoto at martyomoto@rcip.com
6. Dr Jerry
Kartzinel Medical Seminar
Topic: Dr
Jerry Kartzinel – Pediatrician from ICDRC
International Child Development Resources Center - Melbourne, Florida
COMMON MEDICAL PROBLEMS & TREATMENT OPTIONS FOR CHILDREN WITH
AUTISM
IMPORTANT NEW STUDIES TO BE REVIEWED
Guidelines and suggestions for PARENTS and Physicians
NOTE: Even if you have seen Dr Jerry BEFORE, this presentation
material changes.
Date: Saturday June 19, 2004
Time: 9:00am – 1:00pm (lunch on your own)
Location: Orange County, CALIFORNIA – (you
must RSVP to receive directions)
Costs: $25 per
person BEFORE June 10, 2004
After June 10th and On-Site: $35.00
Scholarship opportunities are available if needed
Registration: Payment
is $25 per person –
Please make your check out to ICDRC
Mail to: TACA – Dr
Jerry Seminar
PO Box 12409 Newport Beach, CA 92658-2409
BE SURE TO INCLUDE YOUR INFORMATION:
Name of each attendee
Email address (confirmation will be sent via EMAIL ONLY)
Mailing Address, City, State, ZIP Code
Phone Number
Note: This event
will sell out. Please be sure to mail your check early. Thank
you. CHECKS WILL BE RETURNED IF MADE OUT TO THE WRONG PARTY!!
Questions?? tacanow@cox.net
Who is Dr Jerry? http://www.icdrc.org
Babysitting: Unfortunately
no babysitting is available for this event
7. Need more
support? MORE
COFFEE TALK!
Coffee Talk
is going to be your hour (or so) once the kids are away
at school to chat with other families affected by Autism.
This is an unstructured, casual meeting environment to
chat and talk about what you want to talk about.
Date: Tuesday,
April 13th
Time: 9:00 a.m. – 10:30 a.m.
Location: Diedrich
Coffee – Costa Mesa
1170
Baker Street (off the 405 freeway and Fairview Street)
NO need
to RSVP, just join us for a little coffee, a little talk,
no big whoop!
8. April
is Autism Awareness Month:
Remember
to DO SOMETHING to recognize April as Autism Awareness
month! This is not just for your family which is aware
of autism everyday, but for the folks around you! As more
people become of autism, the lack of funding for research
and treatment and how it affects families – THE MORE GOOD
FOR OUR FAMILIES THAT WILL HAPPEN! Go out there, People,
and make folks aware!
Ad Idea: Want an AUTISM AWARENESS PIN
FOR APRIL?? Attend a TACA meeting for this fundraiser and AUTISM
AWARENESS MONTH! (see section 2 of this email for a list of
TACA meetings near you!)
ANOTHER IDEA:
This is your great opportunity to really shine in your own community
and get the word out about autism to the average citizen.
Talk to everyone about it...clerks
in the grocery store, checkout attendants at Wal-Mart, people
at the gas station...you never know when you are going to run
into a new family.
There are plenty of conversation-opening
items available at the Unlocking Autism website.
Send your pictures to the Open
Your Eyes project and get 10 other families in your community
to do the same thing (our site makes it easy to submit electronically
now!) Print out the Open Your Eyes form and distribute it throughout
your child's school.
Print out copies of the color
sheets and information from our Kidz Korner and visit your
child's school or their sibling's school and teach the other
kids about autism.
Print out a flyer touching
on the rise in autism and pass it out in your communities.
Meet with your local bookstores and ask them to set up a table
at the front of the store with various books on autism.
Wear an autism awareness t-shirt
or bracelet from Unlocking Autism Gear. They are great conversation
starters and attention grabbing!
Visit www.unlockingautism.org
today for more ideas!
LOCAL EVENTS:
Here is a list of activities FOR APRIL
1. CAN WalkNOW
April 17th
info: www.cureautismnow.org www.walknow.org
2. Power of 1.5
Rally in Washington DC April 21-23
info: www.unlockingautism.org
Radio Program
on Autism:
Monday, April 12, from 1 pm – 2 pm ET (WMNF 88.5FM). The show is
on medicine, hosted by Carol Roberts, MD, and is also heard on
the Internet at www.WMNF.org . The first half of the show is
talk, the second half listeners call in with questions. The show
is based in Florida, but
with the Internet can be heard anywhere. Speakers include: Dr
Jeff Bradstreet, attorney Jim Donnelly and our very own MARY
ROMANIEC (parent to Daniel).
9. Passover
offers some Gluten-Free/Casein-Free diet offerings!
From the fabulous Gina Levy:
A few comments on what is available
for Passover…
In LA, the kosher shopping
areas are Fairfax between Beverly & Melrose, and
Pico, east of Robertson. There are some bakeries that make
everything with Potato starch and ground tree nuts; no matzo
meal is used. The one I like is Beverly Hills Bakery on Pico
near Cardiff. Sale prices
will start on April 8. They will close on April 11 - to reopen
as a regular bakery on the 14th. They are not open on Saturdays
or April 6, 7, 12 & 13 as these are the first and last
days of the holiday. Schwartz's Bakery on Fairfax also
bakes for Passover, but sometimes uses matzo meal.
In the grocery stores, look
for items made with Potato Starch Only or that say Non-Gebrots.
Western Kosher on Fairfax has
a nice selection this year. Certain Jews avoid matzo soaked
in liquid, so they use potato starch for everything. This year
I found cake mixes, chocolate chip cookie mixes (non-dairy
too!) and blintz mix. I haven't tried them yet.
We use oat matzo and haven't
had any problems. These particular oats are specially grown,
harvested and baked to ensure no cross-contamination. They
are however, $18 per pound!
Be careful with the macaroons
in cans. One of the companies changed their recipe last year
to include matzo meal. Only Streits is still 100% coconut.
Buy in quantities when you can find them at 99 cents a can!
I have also found them at the 99 cents stores after the holiday.
They do keep very well.
If you are CF as well as GF
(we aren't) make sure it says Pareve and there is no D next
to the kosher symbol.
And from
another TACA Friend: Chabad.org - Torah, Judaism
and Jewish Info: (front page right is a "find
a Passover Seder anywhere in the world" link) plus
many great articles.
10. Upcoming
Fee-Based Conferences & Seminars
in Southern
California:
=====
Estate Planning Seminar
When: Thursday, April
22, 2004
MetLife, as well as Attorney Chris Poulos, will discuss the importance
of a special needs trust, and other aspects of planning and protecting
the future of a loved one with a developmental disability.
Time: 6:30
to 8:30 p.m.
Locale: Regional Center of Orange County-East
Area Office, 801 Civic Center Drive, Board Room B, Santa Ana, Cost:
FREE Reservations (English recording) can be made by calling
(714) 796-5100 ext. 5904.
=====
Academy of Private Practice SLP Annual
Clinical Conference Sensory Integration and the DIRtm
model
presented by Rosemary White, OTR.
Apr 22 Los Angeles
$190 by April 1st
Marina Del Rey Hotel
Mindy - web www.aappspa.org / email - aappspa@aol.com / phone:
805-497-7661
=====
Autism Conference announced for Southern California by CASD.
Location: Long Beach – May
14-16
Watch web site for speaker list: http://www.casdweb.org/index.htm
If you have questions or would like more information, please
email the director at kazuko@grandecom.net.
=====
Autism One Conference
MAJOR conference in CHICAGO, IL. Yes,
that is far, but the speaker lineup and content is AMAZING. Largest
amount of speakers and variety of topics! For more details: www.autismone.org
Dates: May 27-30, 2004.
=====
Autism/Asperger's 2004 CEUs
for ASHA & APA
Tony Attwood, Ph.D. offers the 2nd in his Asperger's Workshop
series, going in-depth on "Behavior & Anger Management, Challenges
of Adolescence, Pre-Teen & Teens, and New Perspectives on
Turning Special Interests into Positives." 8 am -4:30 pm
Jul 31, San Bernardino Prof.$135
(group rate Prof $115- Student/Family Member $110 (Fam. group
rate $95) Person w/ ASD $75 Please see web site for up-dates.
Future Horizons 800-489-0727 www.FutureHorizons-autism.com and
email: info@FutureHorizons-autism.com
=====
DAN! (Defeat Autism NOW!) CONFERENCE
UPDATE:
Spring DAN! Washington D.C. -
April 16-18
Fall DAN! Los Angeles, CA -
October 1-3
Watch www.autism.com/ari for more details!
11. Social
Events:
Just FYI, while the carousel
may not always be an option, OCME does have a set schedule
for their monthly weekend train rides: http://www.livesteamclubs.com/Ocme/Rundays.html
While this isn't a TACA specific
event, it certainly caters to a common interest in our kids.
The trains run every month, the third full weekend of the month.
12. Personal
Note:
Wow, as usual the world is
spinning with fierce force and a myriad of activities in the
Ackerman house. Here is an update:
- The amazing daughter Lauren
turns 21 yesterday. I cannot tell you how old that makes me
feel! But I can say that words cannot describe how proud I
am of her! Lauren is in her third year at UCI holding down
an “A” average in all her upper division classes! (Wow! That
is smart peoples!)
- Officially I retired (!)
from a full-time job as of March 31, 2004. People are calling me a “lady
of leisure.” I keep waiting for the leisure part to happen.
I am more like the “lady of ADD” simply because finishing one
task and moving to the next has not happened since my journey
as “haus frau” started! (OK, so Lauren is 21 and I am retired??!
That does confirm I AM OLD!) The office thru me an amazing
going away party. The usual card with good-bye sentiments but
the unusual and incredibly touching gift – almost $1,500 in
cash and checks donated to TACA! Guess they know my mission
all to well. (I AM SO LUCKY TO KNOW THESE FOLKS!)
- And Senor Jeff turns 7 on
Wednesday! We have been working on the countdown to cake and
presents for Jeff. He also knows he only has a day or so of
being 6. Him being 7 sounds SO OLD! I keep thinking that we
have time to bring up the deficits in Jeff’s skills -- he is
so young. But as Jeff ages, I absolutely see progress and see
he is making great strides but some skills (breaking it down
to social skills and especially speech) he is still behind
and definitely qualifies for services. Reports from all providers
are being compiled for IEP season as I type. It is always great
to see the progress from year to year but also be slapped up
side the head with the deficits. Of course, I will rejoice
the progress but my focus as the stay-at-home mom is all about
Jeff. He is my project.
I am happy to report – husband
Glen has no changes in his life right now! He is the only one
in the family without change! As usual, he is the rock of stability
while his ADD wife bounces around during the day. Does he wonder
what I do during the day? He told me this morning he was scared
of what I just may do now that I have more time. Scared???!
Now why is that? I think I will ponder that until the next
interruption!
Hugs, thanks, and be SAFE,
Lisa A. Jeff's mom
Web
Page for TACA Group: www.tacanow.com!
Talk About Curing Autism
(TACA) provides general information of interest to
the autism community. The information comes from a
variety of sources and TACA does not independently
verify any of it. The views expressed herein are not
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