E-News June 2005

Here is your update on the TACA (TALK ABOUT CURING AUTISM) Group for June 2005 - #3. As always, email your thoughts and/or questions. I want to make this e-newsletter informative for you. Let me know your thoughts on how I can improve it.

If this email is NEW to you and you don't recognize the name... WELCOME! These emails happen two to four times a month for the Southern California autism support group called TACA. As always, email your thoughts and/or questions to us. I want to make this e-newsletter informative for you. Let me know your thoughts on how I can improve it.

Talk About Curing Autism (TACA) provides general information of interest to the autism community. The information comes from a variety of sources and TACA does not independently verify any of it. The views expressed herein are not necessarily TACA?s. We focus on parent information and support, parent mentoring, dietary intervention, the latest in medical research, special education law, reviews of the latest treatments, and many other topics relating to Autism. Our main goal is to build our community so we can connect, share and support each other.

In This Month's Edition of TACA e-news:

  1. Upcoming TACA Costa Mesa schedule & other TACA meeting schedule info:
    June - September 2005 meeting schedule.

    • PLEASE NOTE:
      WE HAVE GREATLY EXPANDED OUR TACA COSTA MESA MEETING DATES & OFFERINGS! WE ARE VERY EXCITED ABOUT THE UPCOMING SPEAKERS! Please check out the variety of meeting dates, times & speakers!
    • We are excited about the upcoming Dr. Jerry Kartzinel medical seminar. We have recently added Dr. Andrew Wakefields as our special guest. Due to this annoucement we are almost sold out! Please sign up ASAP for this conference!
  2. UPDATE – The TACA Friends & Family Campaign
  3. General News:
  4. Vaccine News
  5. Fun Activities
  6. TACA Mom In Need
  7. Latest TACA Survey Results
  8. New Books & Web Resources
  9. Upcoming Conference s & Seminar s
  10. Personal note

1. Upcoming TACA Costa Mesa Meeting Schedule

  All meetings At The Vineyard:
  102 E. Baker
  Costa Mesa, CA
  CLICK HERE TO FIND A MEETING


We are excited about the upcoming Dr Jerry Kartzinel medical seminar.
We have recently added Dr. Andrew Wakefield as our special guest.
Due to the this announcement we are almost sold out! Please sign up asap for this conference!
 
Saturday, June 25, 2005: Dr Jerry Kartzinel – The Latest in Biomedical Treatments for ASD
 

Our annual fundraiser for hosting Dr Jerry for TACA families is here! Be a part of this special presentation and hear the latest in biomedical research.
Also just added: our special guest Dr Andrew Wakefield from Thoughtful
House will be making a presentation on the latest research efforts and ASD.

  • Presented By: Dr Jerry Kartzinel & Dr Andrew Wakefield
                          www.thoughtfulhouse.org

  • Time: 10:00am- 3:00 pm (lunch on your own)

  • Fee: RSVP REQUIRED – LATE registration now in affect
           $35 per person / $55 per couple
           ON SITE REGISTRATION $35 per person
           Register at www.tacanow.org at SHOP TACA !!

  • Location: Vineyard Newport Church 102 E. Baker Costa Mesa

 
Saturday, July 9, 2005: Social Skills & Autism (Topic / date change)
 

This presentation be provided in two parts. Part one will start with a general overview on social skills will all attendees. Part two will divide the audience into 2 groups: Group 1 – higher functioning & verbal spectrum kids ages 6+. Group 2 – will be younger spectrum kids <6 years and all non verbal spectrum children.

  • Presented by: Autism Spectrum Consultants – Jessica Postil & Staff

  • Time: 1:00 pm- 4:00 pm

  • Fee: Free – no RSVP required

  • Location: Vineyard Newport Church 102 E. Baker Costa Mesa

 
Saturday, August 13, 2005: SUPER SATURDAY! TWO MEETINGS / TWO LOCATIONS TO CHOOSE FROM!
   

Parent Open discussions – for support and sharing info – moderated by Diane Gallant

  • Time: 1:00 pm- 4:00 pm
  • Fee: Free – no RSVP required
  • Location: Vineyard Newport Church 102 E. Baker Costa Mesa

Gluten Free / Casein Free COOKING CLASS & Education – by Lisa Ackerman

  • Time: 2:00 pm- 5:00 pm
  • Fee: $25 per person / $40 per couple - RSVP required
  • RSVP off the TACA web site or via mail
    Please be sure to include: name, address, email & phone #. NO walk ins can be accepted.
  • Location: Sur La Table, 832 Avocado Ave, Newport Beach, CA 92660
 
Saturday, September 10, 2005: Dr Christine Majors – Child Neuro-psychologists
 

Her important discussion will review: What is in a standardized test and outside evaluations? Why are they important? Where should you start? The discussion will include important observations about district and regional center testing.

  • Time: 1:00 pm- 4:00 pm

  • Fee: Free – no RSVP required

  • Location: Vineyard Newport Church 102 E. Baker Costa Mesa

 
Sunday, September 25, 2005: TACA’s 2nd Annual Picnic & Fundraiser
 
 

(Please do not contact the church for meeting details. They have graciously offered use of their facility, but are not affiliated with TACA.)

Directions:

405 FWY South, Exit Bristol
Right on Bristol
Left on Baker
Go under FREEWAY.
The Vineyard Church is on the corner just after the freeway - turn left onto the freeway access road,
make FIRST right into the Vineyard's parking lot.

And remember, we are still a non-faith based group!


TACA Has 7 Southern California Meeting Locations:
     
1.
Costa Mesa: 
2nd Saturday of each month (info in item #1 for meeting topics and details)
CLICK HERE TO FIND A MEETING
2. West Hills:

(the Valley, man) 1st Sunday of every month, 7-9 p.m.
Location: Jumping Genius – 22750 Roscoe Blvd., West Hills
(the corner of Roscoe Blvd. & Fallbrook Ave.) Info: Contact us

  • June 5 - Who Pays for What/Managing Your Child's Records - Moira Giammatteo & Cathy Beier

  • July 10 - (DATE CHANGE DUE TO HOLIDAY) - Sarit Ariam - Special Ed Attorney
    IDEA Changes: How they Affect You - How to Navigate the New Maze of Special Education and Still Get the Services Your Child Needs

  • August 7 - Safety and Autism - Moira Giammatteo

  • Sept 11 - (DATE CHANGE DUE TO HOLIDAY) - Mainstreaming/Inclusion - Cathy Beier

3. San Diego:

4th Tuesday evening – 6:30- 8:00 p.m. - Info: Becky Estepp
NEW LOCATION AS OF April 2005: Rancho Bernardo Community Presbyterian Church
17010 Pomerado Road, San Diego, CA 92128 - Rooms 22 A&B

  • May 24, - Dr. Devin Houston--Enzyme therapy
  • June 28 - Author Christina Adams offers TACA members a look at her new book “A Real Boy: A True Story of Autism, Early Intervention and Recovery” (Berkley/Penguin, May 2005). She discusses the struggles and joys of the recovery process, how her son passed a kindergarten-readiness test with no sign of autism detected, and how a new doctor refused to believe he’d ever been diagnosed.
    Christina Adams is the author of A Real Boy: A True Story of Autism, Early Intervention and Recovery (Berkley Books, May 2005) and a commentator for National Public Radio’s Day to Day. Her work has appeared in the Los Angeles Times Magazine, The Los Angeles Times, Brain Child Magazine, Alligator Juniper, Kaleidoscope and Appalachian Heritage, among others. She hosts a show on the Autism One internet radio network.
    Medical publications she has edited include “The Cornerstone Method: IQ Rise Found in Treated PDD children” with author and psychiatrist Dr. Gilbert Kliman.
    Christina served as editor of The Pentagram (the newspaper of the Pentagon), and worked in communications and public relations for the federal government and aerospace and insurance industries. After she obtained a Master of Fine Arts (Creative Writing) degree in 2000, her son was diagnosed with autism. She assembled and ran a cutting-edge educational and biomedical treatment program for him, as described in A Real Boy. He is now in a regular school, has friends and tests above age level in speech and I.Q. Order now on www.amazon.com. Or visit Christina Adams’ website at www.christinaadamswriter.com.
  • July 26 -Amy Langerman, "Lawyer vs. Advocate -- A duel to the finish" 
  • August - no meeting
  • Sept. 27 - Chelation and alternative detoxification methods for ASD children
    Chelation is often a controversial but recommended treatment plan for ASD children who are tested as metals toxic. For as many reports which cite chelation as an alternative practice, Autism Research Institute (ARI) cites chelation to be by far the most recommended biomedical treatment protocol by thousands of parents surveyed this past year. Several recent studies have also outlined that many ASD children have a defect in removing toxic metals from their bodies and should consider treatments that help boost and enable detox. This presentation will review many of the commonly prescribed and natural chelation remedies available today. (This will include: DMPS, DMSA, ALA, Glutathione, and other over the counter supplements used today for chelation and detox.)
    Presented by: Dr. Kurt Woeller – Stillpoint Health www.biohealthcenters.com
    Dr. Woeller is a DAN! (Defeat Autism Now!) Doctor since 1999.
  • October 25 - Siri Andrews --Social Stories for Autism Spectrum Disorders
  • November 29 - Speaker to be announced
  • December - no meeting
4. Corona:

3rd Saturday – 1:30–4:30 p.m. NEW LOCATION AS OF 2/1/2005 : Autism Behavior Consultants - 1880 Town & Country Road Building B-101, Norco, CA 92860. Located off the 15 Freeway (Take 2 nd street or 6 th street exit) off Hamner. For more information, please contact us

  • June 18 Testing & Assessments – by Dr. Christine Majors
    Dr. Majors is a Child Neuropsychologist specializing in autism and other disabilities. Her important discussion will review: What is in a test and outside evaluations? Why are they important? Where should you start? And important observations about district and regional center testing.

5. Torrance: 3rd Monday of each month at Whole Foods Market on PCH in Torrance – 6:30 - 9:00 p.m. Beth Mulholland
SPECIAL NOTE: This group tends to be an advanced group with biomedical discussions. If you are a newly diagnosed family, you may wish to attend other locations for your first meeting.
6. Visalia:

3rd Wednesday of month
Time: 6 p.m. "Happy Hour" with GFCF snacks and coffee 6:30-8:30 p.m. Speaker
Location: Kaweah Delta Multi-Service Center Auditorium, 402 W. Acequia, Visalia
Information: Please contact Lynne Arnold

  • Wednesday, June 15, 2005
    Sensory Integration - Jennifer L. Hoffiz, of Pleasanton¹s Sensory Integration Center
  • Wednesday, July 20, 2005
    Working with the Regional Center: Your Rights Under the Lanterman Act - Enid Perez, Attorney; Kay Spencer, Advocate, of the Office of Client Rights.
  • Newly added meeting: COFFE TALK & SUPPORT
    Time: Every Tuesday morning, 9-11 a.m.
    Location: Visalia Coffee Company, 129 E. Main St., Visalia
7. Santa Rosa:

(typically) 2ndTuesday of each month at Swain Center – 795 Farmers Lane, Suite 27, Santa Rosa – 7:00 - 8:30 p.m. For more info: contact us

Speakers:

  • July - Julie Griffith, Neurologist DAN! Doctor
  • August - Devin Houston, Ph.D. HNI
  • December - Lisa Ackerman

2) STATUS On the TACA “FAMILY & FRIENDS” campaign:

A HEART FELT THANK YOU to everyone who is participating and helping with the TACA Friends and Family campaign. It has been two months since we announced this important awareness and fundraising campaign. We are over halfway through and halfway to our goal with monies received and commitments made!

Here is an update for the TACA Friends & Families campaign:

To date we have:

  • 79 families participating
  • 23 Families have their full or partial campaign efforts already in to TACA

HERE are the amazing efforts of the TACA FRIENDS & FAMILY CAMPAIGN:

FAMILY CAMPAIGN – CONTEST RUNNING TOTAL:

Cary Family

 

$5,550

*

 

Valdez Family

 

$5,000

 

 

Yorks Family

 

$5,000

 

 

O'Connor Family

 

$1,635

 

 

Brodske Family / Ford

$1,246

 

 

Spicer Family

 

$1,200

 

 

Barboza Family

 

$983

 

 

McIlvain Family

 

$525

 

 

Riley Family

 

$521

 

 

Mason Family

 

$480

 

 

Brodie Family

 

$335

 

 

Oishi Family

 

$295

 

 

Johnnson Family

 

$260

 

 

Hong Family

 

$250

 

 

Lee Family

 

$245

 

 

Zielinski Family

 

$235

 

 

Stillman Family

 

$210

 

 

Barstad Family

 

$200

 

 

Kersey Family

 

$200

 

 

Na Family

 

$200

 

 

Lyons Family

 

$200

 

 

Palreddy Family

 

$150

 

 

Ramirez Family

 

$145

 

 

Monahan Family

 

$140

 

 

 

 

 

 

 

 

Total Family Campaign:

$ 25,204

 

 

 

Money In (Bracelets )

$ 1,006

 

 

 

Online Donations:

$ 250

 

 

 

TOTAL DONATIONS IN:

$ 26,460

 

 

 

Family Campaign Goal:

$50,000

 

 

 

GOAL TO GO

$(23,540)

 

 

 

Total Commitments:

$ 12,079

$38,539

in & committed

 

GOAL TO GO

$(11,461)

 

 

(If your family is listed incorrectly or you wish to verify donations – please contact us! THANK YOU!)

The minimum commitments listed above are the minimum goal amounts for each participant who picked up or requested a “red” TACA Friends & Family envelope.

Remember: We will be having a Friends & Family celebration party at Skosh Monahan’s in Costa Mesa this July. We are looking forward to acknowledging and rewarding TACA Friends & Family participants!

It is recommended that you can send all the donations in the single envelope to TACA once donations are collected. If this is not possible and your friends and family are sending checks directly to TACA – please have them send the donation in your family’s honor.  If you have any questions regarding named potential donors and their donation – please drop me a note. I will be happy to let you know when these donations come in!

We still need your help! If you can, please help make your circle of friends and family aware about autism and help support TACA’s efforts. If you need an additional wish to participate and receive fundraising package or additional blue Autism bracelets – please let me know! To read all the details, please see this link: http://www.tacanow.com/campaign_family_friends.htm

The campaign ends on June 30, 2005 . Please help us wrap this campaign with a bang!!

TACA now offers online donations for this campaign at: http://www.tacanow.com/shop.htm.

As always – A BIG THANK YOU FOR YOUR IMPORTANT EFFORTS IN FUNDRAISING AND RAISING AUTISM AWARENESS! Please let me know if you have any questions or need any help.

All my best,
Lisa A Jeff’s (and Lauren’s) Mom


3) General News

Article A: Autism Increase is not a result of re-classification

Michele G. Sullivan
Mid-Atlantic Bureau

The apparent increase in autism disorders reflects an actual increase in prevalence, rather than a reclassification of other developmental disorders as autism, reported Craig Newschaffer, Ph.D., of Johns Hopkins University, Baltimore, and his colleagues.

Some researchers have suggested that children who would once have been classified in other categories—such as mental retardation or speech disorders—are now being diagnosed as autistic and that this “diagnostic shifting” accounts for the increase in autism. This is not the case, the investigators maintained, because although autism diagnoses have risen, there has been no corresponding decrease in other diagnostic categories (Pediatrics 2005;115:e277-82).

Dr. Newschaffer and his associates examined data from the U.S. Department of Education's office of special education programs for 1992-2001. These records reflect state counts of children who received free public education services. The children were classified into 13 primary disability categories defined under the Individuals with Disabilities Education Act.

The researchers calculated the prevalence of autism, traumatic brain injury, mental retardation, speech/language impairment, and other health impairments in children aged 6-17 years during each of these years. They then superimposed those data onto birth cohorts extending as far back as 1975.

There were clear, significant increases in the prevalence of autism among younger birth cohorts, especially those born between 1987 and 1992. During those years, autism prevalence rose by about 50% every 2 years; the prevalence was 5.3/10,000 in 1984, 7.8/10,000 in 1986, 11.8/10,000 in 1988, and 18.3/10,000 in 1990.

There were no changes, however, in the prevalence of mental retardation, speech/language impairment, or traumatic brain injury, which suggests that the increase in autism is real and not the result of reclassification of diagnoses or across-the-board increases in special education classification.

The yearly increases seemed to begin leveling off after 1992. It's impossible to know if that observation represents a true decrease in prevalence, however. Since 1997, federal law has allowed state and local education agencies to classify as “developmentally delayed” children as old as 9 years, Dr. Newschaffer and his associates noted.

“It is possible that increasing proportions of children in younger cohorts who would have been classified previously as having autism as they transitioned out of preschool special education retain developmental delay classifications,” the investigators said. This may mean that children are now simply being diagnosed with autism at later ages.

Additionally, Thomas Burns, Psy.D., said in an interview, the numbers paint the spectrum of autism diagnoses with the broadest brush possible.

The Department of Education uses only one autism classification, which includes all students receiving services who have been diagnosed with any one of the autism spectrum disorders. Thus, the study's prevalence numbers included an array of children whose disabilities ranged from severe to mild, Dr. Burns said.

“The study makes it a little hard to compare apples to apples,” said Dr. Burns, director of neuropsychology at Children's Healthcare of Atlanta, because it included “kids who are severely mentally handicapped as well as kids with IQs of 130 who are delayed socially.”

Upcoming studies by the Centers for Disease Control and Prevention, which use uniform diagnostic criteria, may further illuminate the issue. “Some of these other disorders are really objective and easy to identify. You either have traumatic brain injury or you don't. You either have a low IQ and mental retardation, or you don't. With autism and Asperger's, you can be dealing with very vague symptoms and diagnostic criteria that vary from physician to physician and from study to study,” he said.


Article B: Autism Parents Plan Campaign Against W

BY PAUL H.B. SHIN
DAILY NEWS STAFF WRITER

A coalition of parents with autistic children is launching a stinging lobbying campaign against President Bush today, accusing him of reneging on a campaign-trail promise to ban mercury from vaccines.
The group, Unlocking Autism, will deliver letters to the White House and Capitol Hill, urging Bush and lawmakers to prohibit use of Thimerosal, a vaccine preservative that contains mercury.
Whether mercury actually causes autism is still disputed among scientists but advocates note autism has been rising dramatically in the past 20 years.
"Regardless of whether it causes autism, mercury is toxic and it shouldn't be put into children's bodies," said Shelley Hendrix-Reynolds, 36, whose son, Liam, 9, is autistic. "There's a safer alternative."


For the rest of the story visit:
http://www.nydailynews.com/06-07-2005/news/story/316541p-270817c.html


Article C: The Age Autism: One in 15,000 Amish

http://www.washtimes.com/upi-breaking/20050607-030036-7472r.htm

By Dan Olmsted UNITED PRESS INTERNATIONAL

Washington, DC, Jun. 8 (UPI) -- The autism rate for U.S. children is 1 in 166, according to the federal government. The autism rate for the Amish around Middlefield, Ohio, is 1 in 15,000, according to Dr. Heng Wang.

He means that literally: Of 15,000 Amish who live near Middlefield, Wang is aware of just one who has autism. If that figure is anywhere near correct, the autism rate in that community is astonishingly low.

Wang is the medical director, and a physician and researcher, at the DDC Clinic for Special Needs Children, created three years ago to treat the Amish in northeastern Ohio.

"I take care of all the children with special needs," he said, putting him in a unique position to observe autism. The one case Wang has identified is a 12-year-old boy.

Like stitchwork in an Amish quilt, Wang's comments extend a pattern first identified by United Press International in the Pennsylvania Dutch country around Lancaster, Pa.

-- A Lancaster doctor who has treated thousands of Amish for nearly a quarter-century said he had never seen any autism. "We're right in the heart of Amish country and seeing none -- and that's just the way it is," that doctor said last month.

-- An Amish-Mennonite mother with an adopted autistic child said she was aware of only two other children with the disorder. "It is so much more rare among our people," she said.

-- UPI also found scant evidence of autism among the Amish in Indiana and Kentucky, two other states with sizable Amish settlements.

Ohio , with the nation's largest Amish population, appears no different. Asked if he thinks the autism rate among the Amish is low, Wang said: "I would agree with that. In this country, the Amish have less autism. Why? That's a very interesting topic. I think people need to look into it to do more research. This is something we could learn
from."

Wang said the Amish boy's autism is of "unknown etiology," meaning the cause is undetermined. In response to a question, he checked the medical chart and said the boy had received routine childhood immunizations.

The Amish have a religious exemption from immunizations, and traditionally only a minority has allowed children to receive the shots. That number has been increasing, however, and Wang said most Amish parents in the area he serves do vaccinate their children, although that varies greatly by community.

The question arose because in Pennsylvania the Amish-Mennonite mother described what she said was a vaccine link to the cases. She suspects that her adopted daughter, who received immunizations both in China and again after arriving in the Unites States, became autistic because of the shots. She said a second child with autism in the community had "a clear vaccine reaction" and lapsed into autism.

Some parents and a minority of medical professionals think a mercury-based preservative in vaccines -- or in some cases the vaccines themselves -- triggered a huge increase in autism cases in the 1990s, leading to the 1-in-166 rate cited by the Centers for Disease Control and Prevention. In 1999 manufacturers began phasing
out that preservative, called thimerosal, at the CDC's request.

Most mainstream medical experts and federal health authorities say a link between thimerosal and autism has been discredited, although the director of the CDC told Congress she is keeping an open mind about the possibility.

Wang said he did not want to offer an opinion about whether the Ohio boy's vaccinations might be linked to his autism.

(A Virginia doctor told UPI he is treating six other Amish children with autism, none of them vaccinated. In four of the six cases he suspects their autism was triggered by mercury toxicity due to environmental pollution.)

Middlefield's DDC Clinic -- the initials stand for Das Deutsch Center -- opened in 2002 as a collaboration between the Amish and non-Amish communities to aid children with rare genetic and metabolic disorders.

The Amish are prone to genetic disorders because of their isolated gene pool. The clinic has identified 37 genetic diseases among its patients and formed partnerships with 10 research groups and several medical centers.

"The Clinic evolved from the desire of Northeast Ohio Amish families to find answers for their children with genetic disorders," the clinic's Web site explains. "These disorders require attention and research beyond that provided by conventional medicine."

The Amish hope "any research obtained from their efforts has the potential to benefit special needs children throughout the world. This is their gift to us."

That gift, it now appears, could also hold clues to autism.
--

This series on the roots and rise of autism aims to be interactive with readers and will take note of comments, criticism and suggestions. E-mail: dolmsted@upi.com


4.            Vaccine News

Article A: David Kirby, Lyn & Tom Redwood ON MONTEL:

EVIDENCE OF HARM - Autism and Mercury
The Montel Williams Show - Tuesday, June 21

Montel Williams discusses the book and mercury-induced autism
with author David Kirby, Lyn Redwood of Safeminds & others.


Article B: Generation Rescue, Full Page Ads & Recovered Children

USA Today's full page ad can be found at:  http://www.usnewswire.com/attach/GENrescue5-24-05.pdf
 
According to a new poll 68% of Americans say congress does not share their priorities.

Parents have had to fund the research that our public health agencies have refused to do.
Money talks.  And we can fund our own media coverage too.
 
150 Parents of Autistic Children Launch Organization, Ad Campaign with Stunning Message: Removing Mercury Reverses Autism in Kids - Rescue Angels' Guide Parents to Biomedical Treatments 1,000 Parents of Recovered Children Available to Media

5/24/2005 2:00:00 PM

To: National Desk, Health Reporter

Contact: Anne Purdy, 415-901-0111 or apurdy@fenton.com; Voleine Amilcar, 415-901-0111 or vamilcar@fenton.com, both of Fenton Communications

SAN FRANCISCO, May 24 /U.S. Newswire/ -- More than 150 parents of autistic children launched a new nonprofit organization, Generation Rescue, today with a full-page advertisement in USA Today bearing a stunning message: autism is preventable and reversible. Generation Rescue parents are successfully treating their children biomedically and removing mercury from their bodies through a safe and proven detoxification treatment known as chelation therapy.

The organization's Web site, http://www.GenerationRescue.org, provides treatment information and connects parents with more than 150 "Rescue Angels," parents who are successfully treating their own autistic children using a variety of biomedical interventions individualized for each child. Also announced was the availability of 1,000 parents around the country to talk to media about the reversal of autism in their children.

"Our message for parents is very simple: autism is reversible," said J.B. Handley, one of the organization's founding parents and father of a son diagnosed with autism. "I see every day with my own eyes how my son Jamie is recovering from what was previously perceived as an untreatable disorder. With the removal of mercury, Jamie's autistic symptoms go away. He got a second chance at life, and we want to let other parents who are struggling out there know it's possible to get their children back."

Charlie Hoover's 7-year-old son Lenny of Royal Palm, Florida, suffered the classic symptoms of autism - spinning in circles, repetitive behaviors and tantrums. "After Lenny's diagnosis, the more I read, the more the knot in my stomach tightened," said Hoover. "It was as if our son had died."

But after chelation therapy rid Lenny's body of mercury, his symptoms disappeared. Lenny, who loves to play T-ball, is now enrolled in regular kindergarten. "If your child got lead poisoning from eating paint chips, you would certainly do something about that," Hoover said. "What's the difference between mercury and lead?"

The Centers for Disease Control (CDC) estimates that more than 1 in 166 children are diagnosed with autism, up from 1 in 2,500 since the 1970s. According to the CDC, autism is a life-long disorder that is not treatable.

"For years we have heard the experts say that autism is a lifelong disability. This simply is not true anymore, thanks to effective biomedical treatments that can restore many, if not a majority, of autistic children to full recovery," said Bernard Rimland, Ph.D., Director of the Autism Research Institute and co- founder of Defeat Autism Now! (DAN!), a network of doctors throughout the country who treat autistic patients.

"Thousands of formerly autistic patients have shed their autistic symptoms. They now relate normally to their families and to other children. The hand-flapping is gone. The tantrums are gone. Most of these children who used to be lost in their own worlds are now indistinguishable from other children."

The Autism Research Institute has nearly 1,000 parents nationwide who are available for media interviews about their successful biomedical treatment of their autistic children with DAN! doctors (contact media@AutismResearchInstitute.com).

"Our DAN! doctors determine what each individual child needs, then use safe biomedical interventions to heal that child. Many DAN! Doctors report excellent results from using chelation to rid the body of mercury and other toxic metals," said Dr. Rimland.

Recent studies and investigations have indicated that mercury may be behind the autism epidemic. Mercury, the second most toxic element after plutonium, is estimated to be 500 to 1,000 times more toxic than lead. The heavy metal burrows deep into the cells of the brain and other organs and can lead to serious central nervous system damage and crippling neurological disorders. Scientific evidence pointing to mercury poisoning as the cause behind rising autism rates has led many medical doctors to remove the toxin from the bodies of autistic children through chelation.

"The symptoms of early infant mercury poisoning and autism are virtually identical," said Dr. Boyd Haley, chairman of the chemistry department at the University of Kentucky. "Furthermore, research indicates that autistic children genetically have a harder time excreting mercury from their bodies. This is why chelation has become such a powerful key for unlocking and undoing the disorders associated with autism."

Chelation has been used for decades to detoxify people of dangerous levels of heavy metals, due to industrial accidents or other causes. According to the CDC, 60,000 Americans underwent some form of chelation last year, and the therapy is currently under clinical trial with heart disease patients. In autism treatments, chelating "agents" may be administered orally or transdermally (through the skin). Once in the bloodstream, the chelating agent binds to heavy metals and helps remove them from the body.

"Chelation is one of the most effective ways to rid autistic children of the mercury poisoning which is at the root of their disorder," said Lynne Mielke, M.D., a Pleasanton, California physician, who is part of the DAN! network. "The medical establishment already endorses chelation for acute metal toxicity disorders, and the number of doctors who realize chelation's benefits for the chronic metal toxicity found in autism is rapidly growing."

Parents are also eager to help fellow parents navigate the road to treatment for their autistic children. The Generation Rescue Web site, http://www.GenerationRescue.org, offers contacts for more than 150 volunteer "Rescue Angels," who Handley calls the "heart and soul" of Generation Rescue. "We're parents who want to help other parents caught in the nightmare of autism find hope and recovery for their kids," said Handley, who added that the organization is completely founded, funded and run by parents. "Too often parents believe the outdated myth that autism is not treatable or reversible. We're here to tell them otherwise."

Biomedical treatments for autism require the support of a specialized healthcare provider who can tailor treatment to the individual needs of a child. While chelation therapy shows great promise, there are many biomedical treatments being used to heal autistic children.

To view the ad, visit: http://www.generationrescue.org/pdf/052505.pdf

About Generation Rescue

Generation Rescue is a nonprofit organization formed by parents of children diagnosed with autism and other development disorders. Through thorough research, medical consultation and the use of pioneering new medical treatments, the founding parents of Generation Rescue have seen tremendous improvements in their autistic children-including complete recoveries. Generation Rescue's mission is to provide parents the information and support to understand the cause of autism and treatment options. The Web site, www.GenerationRescue.org, gives parents the background to make informed decisions about treatment and connects them with "Rescue Angels," parents of autistic children who voluntarily provide support and guidance on treatment options and providers. Generation Rescue is a 501(c) (3) nonprofit founded in 2005.

About the Autism Research Institute (ARI)

Established in 1967 by Dr. Bernard Rimland, the San Diego- based nonprofit is world headquarters for research and information on autism and related disorders, and the center of a rapidly growing movement that holds that autism can be treated effectively through intensive behavior modification and a variety of individualized biomedical treatments. ARI maintains the world's largest databank of autistic individuals with over 37,000 detailed case histories of autistic children from 60 countries, and is a major source of information on the epidemic and its causes. ARI also helped develop the Defeat Autism Now! (DAN!) project to train physicians and healthcare professionals on successful treatment of autism. ARI is a 501 (c) (3). For more information, contact 619-281-7165 or visit http://www.AutismResearchInstitute.com.


Article C: The Age of Autism: Heavy Metal

By Dan Olmsted

WASHINGTON , May 24 (UPI) -- Parents of autistic children Tuesday launched an organization called Generation Rescue based on their conviction that flushing mercury out of children's bodies improves and in some instances reverses autism.

"For parents who are on their backs with a foot on their neck trying to keep their lives together, we want to help them get to the truth as quickly as possible to help their kids. That is the single reason Generation Rescue exists," said co-founder J.B. Handley of San Francisco, father of a three-year-old, Jamison, who he says has been transformed by chelation (key-LAY-shun) therapy.

The technique involves using doctor-supervised pills or creams that induce excretion of mercury and other toxic metals. While chelation has been used for 40 years as a treatment for lead and other heavy metal poisoning, its impact on autism is unproven and highly controversial.

More controversial than the process, however, is what its adherents say it shows about the cause of autism.

"Through our own research and initiative we have discovered a truth that we feel every parent should know," states the group's Web site, generationrescue.org, which Handley said is funded exclusively by parent donations.

"Autism, Asperger's, ADD, ADHD ... other learning disabilities, and many auto-immune disorders including asthma, juvenile onset diabetes, and anaphylactic food allergies are all caused by and symptoms of mercury poisoning primarily induced by a vaccine preservative called thimerosal."

Thimerosal was used in an increasing number of childhood vaccines from 1931 through 1999, when the federal government recommended phasing it out. The increase in thimerosal follows the same curve as the rise in Autism Spectrum Disorders, which now affect 1 in every 166 U.S. children, according to the Centers for Disease Control and Prevention.

Chelation proceeds on the assumption that because mercury is the problem, getting it out is a big part of the solution.

"The most dramatic effect is the two-way conversation and natural childlike play," Karen Beauvais of Atlanta told United Press International, speaking about her five-year-old son Josh after he underwent chelation. "Only the Mom of a once-silent autistic child could fully appreciate that. It is so nice to hear our little chatterbox talk now."

She said Josh had intestinal problems with an oral chelation compound but has made huge gains with a cream that "brings the chelator through the skin much like hormonal creams. It's great stuff."

"Many parents could benefit from chelation detox if it were mainstream treatment. Funny -- if your child is suffering from lead poisoning they are immediately chelated. But very few autistic children are even offered the option."

A thimerosal-autism link has been flatly rejected by most of the mainstream medical establishment, citing epidemiological studies. A year ago, the prestigious Institute of Medicine not only dismissed the idea but said it was so discredited that research money should go to more "promising" areas. While the IOM says overwhelming evidence shows no link between autism and thimerosal, the director of the CDC, Dr. Julie Gerberding, has told Congress she is keeping "an open mind" about that.

More recently, some clinical studies have suggested a link between autism and mercury. One study in rats found that a genetically susceptible strain developed autistic-like behavior when given thimerosal at a level proportional to childhood vaccines; another reported that many autistic children are low in glutathione, a key anti-oxidant for removing heavy metals from the body; and a Texas study found an association between higher levels of autism and higher exposure to environmental mercury.

Generation Rescue's Handley said his son received thimerosal-containing flu shots -- which are still being given to children despite the phase-out of thimerosal-containing childhood vaccines that began in 1999 -- and may have received other exposures because such vaccines were not immediately pulled from the market.

Handley said his son's improvement in the eight months since they began chelation -- with another 10 months planned -- is "two different worlds. He's gone from being on Pluto, meaning no recognition of his parents' arrival, departure or presence, to being extraordinarily aware of our comings and goings. His eye contact has gone up 1000-fold."

Hundreds of parents are volunteering to serve as "rescue angels" to help families learn about chelation therapy, Handley said; their contacts are listed on the Web site. "They all feel as passionately as my wife and I that parents need to know their kids can get better," Handley said. "We're tired of reading that this is a no-known-cause, no-cure disorder. That's simply an untrue statement."

In probable order of impact, the group asserts, the autism epidemic has been caused by:

--Thimerosal from vaccines;

--"synergistic toxins" that aggravate mercury's effects including antibiotics, aluminum from vaccines, and the body's own testosterone, which the group says explains why 80 to 90 percent of children with autism are boys; --the mother's mercury load while pregnant, including mercury-containing vaccines such as the flu shot and RHO-gam given to RH-negative women; dental mercury amalgams; thimerosal-containing vaccines received prior to pregnancy; and fish consumption before, during and after pregnancy; --the child's own dental mercury amalgams; --the child's high seafood consumption; --environmental mercury that is a byproduct of coal-fired industrial plants, and --other sources including consumer products that contain mercury.

Some of the parents charge that the federal government and mainstream medicine, while skeptical of chelation and scornful of the theory behind it, have been strikingly uninterested in studying its effectiveness. That will be the subject of a future column.


Article D: Vaccines Did & Do Cause Autism
By: Evelyn Pringle Independent Media TV

On Feb 9, 2004, the National Autism Association issued a press release that reported on one of the larger studies under review based on the Center for Disease Control's Vaccine Safety Datalink. Under independent investigation, the Association reported, of the CDC's data children were found to be 27-times more likely to develop autism after exposure to three thimerosal-containing vaccines (TCVs), than those who receive thimerosal-free versions.

Let that sink in. Twenty-seven times more likely to develop autism. Then consider that our government regulatory agencies had this information for years and deliberately kept it hidden from the public. This failure to warn the public was not due to negligence or laziness, it was a deliberate cover-up and it continues today.

How do we know they had it for years? Because the staff for Rep Dan Burton (R-Ill) obtained an FDA internal e-mail written on June 29, 1999, by former FDA scientist Peter Patriarca, that offered a "pros and cons" assessment of the dishonest statement about Thimerosal in vaccines that the FDA was about to release, and described the
questions that could be raised upon its release:

(1) FDA being `asleep at the switch' for decades, by allowing a potentially hazardous compound to remain in many childhood vaccines, and not forcing manufacturers to exclude it from new products. (2) various advisory bodies aggressive recommendations for use. (3) the dose of ethyl mercury was not generated by `rocket science': conversion of the % of thimerosal to actual ug [micrograms] of mercury involves 9th grade algebra. (4) What took the FDA so long to do the calculations? (5) Why didn't CDC and the advisory bodies do these calculations while rapidly expanding the childhood immunization schedule?

The FDA knew.

In 1997, Congress passed the FDA Modernization Act, which required the FDA to review all drugs that contained mercury and determine their adverse effects on humans. For many years, Thimerosal, a mercury-based preservative, was added to childhood vaccines in multi-dose bottles, basically to increase profits for vaccine makers. Thimerosal is nearly 50% mercury, which is a known to be extremely harmful to fetuses, infants and children. Beginning in 1987 and throughout the 1990s, it became the main source of mercury in infants and toddlers when the number of vaccines added to the national vaccine schedule nearly tripled.

In 2000, the FDA determined that a twelve-to-fourteen month old child, receiving vaccines required under the Immunization Schedule, often received four to six shots during one doctor visit. Consequently over time, the child would be injected with as much as 40 times the amount of mercury considered safe.

The corresponding increase in autism is concrete evidence of the link between autism and vaccines. Twenty years ago, autism only affected one in 10,000 children. The Autism Autoimmunity Project reports that the disorder strikes 1 in 150 (or 1 in 68 families) today.

During the 1990s, as some 40 million children were vaccinated, drug company profits soared and there's no doubt that the companies knew about the dangers of Thimerosal and put profits over the health of a whole generation of children.

The LA Times obtained a 1991 internal memo from the drug company, Merck, that proves the company knew then that Thimerosal in vaccines posed a serious health threat. The memo noted that 6-month-old children who received their shots on schedule would get a mercury dose up to 87 times higher than guidelines for the maximum daily consumption of mercury from fish.

As the vaccines increased, autism rates skyrocketed and the numbers don't lie. State by state statistics based on data by the Department of Education, show that the increase in the number of children aged 6-21 with autism between 1992-93 and 2003-04, is astronomical. In Ohio there were 22 cases of autism in 1992-93, and in 2003-04 there were 5146. In Illinois, there were only 5 cases in 1992-1993, while there were 6005 in 2003-04. Mississippi had no cases of autism in 1992-1993, but had 622 in 2003-04. Wisconsin had 18 cases in 1992-93
and 3259 in 2003-04.

In addition to autism, Thimerosal has now been linked to a host of developmental disorders including Attention Deficit Disorder, and Attention Deficit Hyperactivity Disorder and ironically, the pharmaceutical industry is now making money hand over fist off drugs prescribed to treat children with these disorders.

The drug companies can pay doctors, researchers and reporters to write a million articles and reports that say there is no connection between Thimerosal and autism, but that won't change the truth. Thimerosal is the culprit and a million false denial won't change that fact.

Plenty of experts with nothing to gain say so. When asked to what degree of scientific certainty can we prove that current epidemic of autism was caused by the mercury-based preservative, Thimerosal, in childhood vaccines? Dr David Ayoub, MD, said 'I can state that the certainty of the science supporting mercury as a major cause of autism is probably more overpowering than the science behind any other disease process that I studied dating back to medical school.'

In May 2003 the AAP stated, 'All routinely recommended infant vaccines currently sold in the U.S. are free of thimerosal as a preservative and have been for more than two years." Yet because the FDA maintained it did not have enough evidence to justify a recall of thimerosal vaccines distributed prior to the introduction of thimerosal-free versions and so they were allowed to remain on the market until they became outdated. That means that poisonous vaccines were still administered until November 2002.

'Because the FDA chose not to recall thimerosal-containing vaccines in 1999,' the April 2003, House Committee on Government Reform report concludes, 'in addition to all of those already injured, 8,000 children a day continued to be placed at risk for overdose for at least an additional two years.' Parents need to know that flu vaccines currently recommended for infants and pregnant women still contain Thimerosal to this very day.

The CDC and FDA policy decisions about matter such as approving vaccines for inclusion on the immunization schedule are made by physician advisory boards whose members very often have strong financial relationships with the very same pharmaceutical companies that they are supposed to regulate.

For example, during a congressional hearing on potential conflicts of interests at the FDA, it was revealed that 60% of the advisory members who voted to approve the poisonous rotavirus vaccine had financial ties to the drug companies manufacturing the vaccine. The committee also found that 50% of the CDC members were tied to the rotavirus makers.

The public needs to rise up and demand accountability from the officials in charge of all regulatory agencies involved in concealing information that could have saved many families from the devastation of these ill-administered vaccines.

In order to enroll in public schools and day care, children must comply with mandatory vaccine schedule, which includes vaccines that have not undergone the scientific testing necessary to guarantee their safety, and have the potential to harm millions of children. If families are expected to trust the government's vaccine approval process, they have a right to demand that the vaccines are approved based on scientific research, without the undue influence of money passed out to politicians, scientists, and the heads of the regulatory agencies, by the pharmaceutical industry.

The children who were affected by this cover-up will require care and support for a lifetime. The lives of many of these children are destroyed. The costs for their care, left to their families, will reportedly exceed $2 million per child.

The drug companies and the government officials involved in this vaccine marketing scheme and the subsequent cover-up of the damage it caused need to be criminally charged and made to pay for their crimes.

Evelyn Pringle epringle05@ yahoo.com (Evelyn Pringle is a columnist for Independent Media TV and an
investigative journalist focused on exposing corruption in government)

Original Link: http://www.independent-media.tv


Article E: Appearing in Rolling Stone & Salon Magazine – by Robert F Kennedy Jr – Investigates the Government Cover up of Mercury/Autism Scandal

www.evidenceofharm.com
Deadly Immunity
Robert F. Kennedy Jr. investigates the government cover-up of a mercury/autism scandal
By ROBERT F. KENNEDY JR.

In June 2000, a group of top government scientists and health officials gathered for a meeting at the isolated Simpsonwood conference center in Norcross, Georgia. Convened by the Centers for Disease Control and Prevention, the meeting was held at this Methodist retreat center, nestled in wooded farmland next to the Chattahoochee River, to ensure complete secrecy. The agency had issued no public announcement of the session -- only private invitations to fifty-two attendees. There were high-level officials from the CDC and the Food and Drug Administration, the top vaccine specialist from the World Health Organization in Geneva and representatives of every major vaccine manufacturer, including GlaxoSmithKline, Merck, Wyeth and Aventis Pasteur. All of the scientific data under discussion, CDC officials repeatedly reminded the participants, was strictly "embargoed." There would be no making photocopies of documents, no taking papers with them when they left.

The federal officials and industry representatives had assembled to discuss a disturbing new study that raised alarming questions about the safety of a host of common childhood vaccines administered to infants and young children. According to a CDC epidemiologist named Tom Verstraeten, who had analyzed the agency's massive database containing the medical records of 100,000 children, a mercury-based preservative in the vaccines -- thimerosal -- appeared to be responsible for a dramatic increase in autism and a host of other neurological disorders among children. "I was actually stunned by what I saw," Verstraeten told those assembled at Simpsonwood, citing the staggering number of earlier studies that indicate a link between thimerosal and speech delays, attention-deficit disorder, hyperactivity and autism. Since 1991, when the CDC and the FDA had recommended that three additional vaccines laced with the preservative be given to extremely young infants -- in one case, within hours of birth -- the estimated number of cases of autism had increased fifteenfold, from one in every 2,500 children to one in 166 children.

Even for scientists and doctors accustomed to confronting issues of life and death, the findings were frightening. "You can play with this all you want," Dr. Bill Weil, a consultant for the American Academy of Pediatrics, told the group. The results "are statistically significant." Dr. Richard Johnston, an immunologist and pediatrician from the University of Colorado whose grandson had been born early on the morning of the meeting's first day, was even more alarmed. "My gut feeling?" he said. "Forgive this personal comment -- I do not want my grandson to get a thimerosal-containing vaccine until we know better what is going on."

But instead of taking immediate steps to alert the public and rid the vaccine supply of thimerosal, the officials and executives at Simpsonwood spent most of the next two days discussing how to cover up the damaging data. According to transcripts obtained under the Freedom of Information Act, many at the meeting were concerned about how the damaging revelations about thimerosal would affect the vaccine industry's bottom line. "We are in a bad position from the standpoint of defending any lawsuits," said Dr. Robert Brent, a pediatrician at the Alfred I. duPont Hospital for Children in Delaware. "This will be a resource to our very busy plaintiff attorneys in this country." Dr. Bob Chen, head of vaccine safety for the CDC, expressed relief that "given the sensitivity of the information, we have been able to keep it out of the hands of, let's say, less responsible hands." Dr. John Clements, vaccines adviser at the World Health Organization, declared flatly that the study "should not have been done at all" and warned that the results "will be taken by others and will be used in ways beyond the control of this group. The research results have to be handled."

In fact, the government has proved to be far more adept at handling the damage than at protecting children's health. The CDC paid the Institute of Medicine to conduct a new study to whitewash the risks of thimerosal, ordering researchers to "rule out" the chemical's link to autism. It withheld Verstraeten's findings, even though they had been slated for immediate publication, and told other scientists that his original data had been "lost" and could not be replicated. And to thwart the Freedom of Information Act, it handed its giant database of vaccine records over to a private company, declaring it off-limits to researchers. By the time Verstraeten finally published his study in 2003, he had gone to work for GlaxoSmithKline and reworked his data to bury the link between thimerosal and autism.

Vaccine manufacturers had already begun to phase thimerosal out of injections given to American infants -- but they continued to sell off their mercury-based supplies of vaccines until last year. The CDC and FDA gave them a hand, buying up the tainted vaccines for export to developing countries and allowing drug companies to continue using the preservative in some American vaccines -- including several pediatric flu shots as well as tetanus boosters routinely given to eleven-year-olds.

The drug companies are also getting help from powerful lawmakers in Washington. Senate Majority Leader Bill Frist, who has received $873,000 in contributions from the pharmaceutical industry, has been working to immunize vaccine makers from liability in 4,200 lawsuits that have been filed by the parents of injured children. On five separate occasions, Frist has tried to seal all of the government's vaccine-related documents -- including the Simpsonwood transcripts -- and shield Eli Lilly, the developer of thimerosal, from subpoenas. In 2002, the day after Frist quietly slipped a rider known as the "Eli Lilly Protection Act" into a homeland security bill, the company contributed $10,000 to his campaign and bought 5,000 copies of his book on bioterrorism. The measure was repealed by Congress in 2003 -- but earlier this year, Frist slipped another provision into an anti-terrorism bill that would deny compensation to children suffering from vaccine-related brain disorders. "The lawsuits are of such magnitude that they could put vaccine producers out of business and limit our capacity to deal with a biological attack by terrorists," says Andy Olsen, a legislative assistant to Frist.

Even many conservatives are shocked by the government's effort to cover up the dangers of thimerosal. Rep. Dan Burton, a Republican from Indiana, oversaw a three-year investigation of thimerosal after his grandson was diagnosed with autism. "Thimerosal used as a preservative in vaccines is directly related to the autism epidemic," his House Government Reform Committee concluded in its final report. "This epidemic in all probability may have been prevented or curtailed had the FDA not been asleep at the switch regarding a lack of safety data regarding injected thimerosal, a known neurotoxin." The FDA and other public-health agencies failed to act, the committee added, out of "institutional malfeasance for self protection" and "misplaced protectionism of the pharmaceutical industry."

The story of how government health agencies colluded with Big Pharma to hide the risks of thimerosal from the public is a chilling case study of institutional arrogance, power and greed. I was drawn into the controversy only reluctantly. As an attorney and environmentalist who has spent years working on issues of mercury toxicity, I frequently met mothers of autistic children who were absolutely convinced that their kids had been injured by vaccines. Privately, I was skeptical.

I doubted that autism could be blamed on a single source, and I certainly understood the government's need to reassure parents that vaccinations are safe; the eradication of deadly childhood diseases depends on it. I tended to agree with skeptics like Rep. Henry Waxman, a Democrat from California, who criticized his colleagues on the House Government Reform Committee for leaping to conclusions about autism and vaccinations. "Why should we scare people about immunization," Waxman pointed out at one hearing, "until we know the facts?"

It was only after reading the Simpsonwood transcripts, studying the leading scientific research and talking with many of the nation's pre-eminent authorities on mercury that I became convinced that the link between thimerosal and the epidemic of childhood neurological disorders is real. Five of my own children are members of the Thimerosal Generation -- those born between 1989 and 2003 -- who received heavy doses of mercury from vaccines. "The elementary grades are overwhelmed with children who have symptoms of neurological or immune-system damage," Patti White, a school nurse, told the House Government Reform Committee in 1999. "Vaccines are supposed to be making us healthier; however, in twenty-five years of nursing I have never seen so many damaged, sick kids. Something very, very wrong is happening to our children."

More than 500,000 kids currently suffer from autism, and pediatricians diagnose more than 40,000 new cases every year. The disease was unknown until 1943, when it was identified and diagnosed among eleven children born in the months after thimerosal was first added to baby vaccines in 1931.

Some skeptics dispute that the rise in autism is caused by thimerosal-tainted vaccinations. They argue that the increase is a result of better diagnosis -- a theory that seems questionable at best, given that most of the new cases of autism are clustered within a single generation of children. "If the epidemic is truly an artifact of poor diagnosis," scoffs Dr. Boyd Haley, one of the world's authorities on mercury toxicity, "then where are all the twenty-year-old autistics?" Other researchers point out that Americans are exposed to a greater cumulative "load" of mercury than ever before, from contaminated fish to dental fillings, and suggest that thimerosal in vaccines may be only part of a much larger problem. It's a concern that certainly deserves far more attention than it has received -- but it overlooks the fact that the mercury concentrations in vaccines dwarf other sources of exposure to our children.

What is most striking is the lengths to which many of the leading detectives have gone to ignore -- and cover up -- the evidence against thimerosal. From the very beginning, the scientific case against the mercury additive has been overwhelming. The preservative, which is used to stem fungi and bacterial growth in vaccines, contains ethylmercury, a potent neurotoxin. Truckloads of studies have shown that mercury tends to accumulate in the brains of primates and other animals after they are injected with vaccines -- and that the developing brains of infants are particularly susceptible. In 1977, a Russian study found that adults exposed to much lower concentrations of ethylmercury than those given to American children still suffered brain damage years later. Russia banned thimerosal from children's vaccines twenty years ago, and Denmark, Austria, Japan, Great Britain and all the Scandinavian countries have since followed suit.

"You couldn't even construct a study that shows thimerosal is safe," says Haley, who heads the chemistry department at the University of Kentucky. "It's just too darn toxic. If you inject thimerosal into an animal, its brain will sicken. If you apply it to living tissue, the cells die. If you put it in a petri dish, the culture dies. Knowing these things, it would be shocking if one could inject it into an infant without causing damage."

Internal documents reveal that Eli Lilly, which first developed thimerosal, knew from the start that its product could cause damage -- and even death -- in both animals and humans. In 1930, the company tested thimerosal by administering it to twenty-two patients with terminal meningitis, all of whom died within weeks of being injected -- a fact Lilly didn't bother to report in its study declaring thimerosal safe. In 1935, researchers at another vaccine manufacturer, Pittman-Moore, warned Lilly that its claims about thimerosal's safety "did not check with ours." Half the dogs Pittman injected with thimerosal-based vaccines became sick, leading researchers there to declare the preservative "unsatisfactory as a serum intended for use on dogs."

In the decades that followed, the evidence against thimerosal continued to mount. During the Second World War, when the Department of Defense used the preservative in vaccines on soldiers, it required Lilly to label it "poison." In 1967, a study in Applied Microbiology found that thimerosal killed mice when added to injected vaccines. Four years later, Lilly's own studies discerned that thimerosal was "toxic to tissue cells" in concentrations as low as one part per million -- 100 times weaker than the concentration in a typical vaccine. Even so, the company continued to promote thimerosal as "nontoxic" and also incorporated it into topical disinfectants. In 1977, ten babies at a Toronto hospital died when an antiseptic preserved with thimerosal was dabbed onto their umbilical cords.

In 1982, the FDA proposed a ban on over-the-counter products that contained thimerosal, and in 1991 the agency considered banning it from animal vaccines. But tragically, that same year, the CDC recommended that infants be injected with a series of mercury-laced vaccines. Newborns would be vaccinated for hepatitis B within twenty-four hours of birth, and two-month-old infants would be immunized for haemophilus influenzae B and diphtheria-tetanus-pertussis.

The drug industry knew the additional vaccines posed a danger. The same year that the CDC approved the new vaccines, Dr. Maurice Hilleman, one of the fathers of Merck's vaccine programs, warned the company that six-month-olds who were administered the shots would suffer dangerous exposure to mercury. He recommended that thimerosal be discontinued, "especially when used on infants and children," noting that the industry knew of nontoxic alternatives. "The best way to go," he added, "is to switch to dispensing the actual vaccines without adding preservatives."

For Merck and other drug companies, however, the obstacle was money. Thimerosal enables the pharmaceutical industry to package vaccines in vials that contain multiple doses, which require additional protection because they are more easily contaminated by multiple needle entries. The larger vials cost half as much to produce as smaller, single-dose vials, making it cheaper for international agencies to distribute them to impoverished regions at risk of epidemics. Faced with this "cost consideration," Merck ignored Hilleman's warnings, and government officials continued to push more and more thimerosal-based vaccines for children. Before 1989, American preschoolers received only three vaccinations -- for polio, diphtheria-tetanus-pertussis and measles-mumps-rubella. A decade later, thanks to federal recommendations, children were receiving a total of twenty-two immunizations by the time they reached first grade.

As the number of vaccines increased, the rate of autism among children exploded. During the 1990s, 40 million children were injected with thimerosal-based vaccines, receiving unprecedented levels of mercury during a period critical for brain development. Despite the well-documented dangers of thimerosal, it appears that no one bothered to add up the cumulative dose of mercury that children would receive from the mandated vaccines. "What took the FDA so long to do the calculations?" Peter Patriarca, director of viral products for the agency, asked in an e-mail to the CDC in 1999. "Why didn't CDC and the advisory bodies do these calculations when they rapidly expanded the childhood immunization schedule?"

But by that time, the damage was done. Infants who received all their vaccines, plus boosters, by the age of six months were being injected with levels of ethylmercury 187 times greater than the EPA's limit for daily exposure to methylmercury, a related neurotoxin. Although the vaccine industry insists that ethylmercury poses little danger because it breaks down rapidly and is removed by the body, several studies -- including one published in April by the National Institutes of Health -- suggest that ethylmercury is actually more toxic to developing brains and stays in the brain longer than methylmercury.

Officials responsible for childhood immunizations insist that the additional vaccines were necessary to protect infants from disease and that thimerosal is still essential in developing nations, which, they often claim, cannot afford the single-dose vials that don't require a preservative. Dr. Paul Offit, one of CDC's top vaccine advisers, told me, "I think if we really have an influenza pandemic -- and certainly we will in the next twenty years, because we always do -- there's no way on God's earth that we immunize 280 million people with single-dose vials. There has to be multidose vials."

But while public-health officials may have been well-intentioned, many of those on the CDC advisory committee who backed the additional vaccines had close ties to the industry. Dr. Sam Katz, the committee's chair, was a paid consultant for most of the major vaccine makers and shares a patent on a measles vaccine with Merck, which also manufactures the hepatitis B vaccine. Dr. Neal Halsey, another committee member, worked as a researcher for the vaccine companies and received honoraria from Abbott Labs for his research on the hepatitis B vaccine.

Indeed, in the tight circle of scientists who work on vaccines, such conflicts of interest are common. Rep. Burton says that the CDC "routinely allows scientists with blatant conflicts of interest to serve on intellectual advisory committees that make recommendations on new vaccines," even though they have "interests in the products and companies for which they are supposed to be providing unbiased oversight." The House Government Reform Committee discovered that four of the eight CDC advisers who approved guidelines for a rotavirus vaccine laced with thimerosal "had financial ties to the pharmaceutical companies that were developing different versions of the vaccine."

Offit, who shares a patent on the vaccine, acknowledged to me that he "would make money" if his vote to approve it eventually leads to a marketable product. But he dismissed my suggestion that a scientist's direct financial stake in CDC approval might bias his judgment. "It provides no conflict for me," he insists. "I have simply been informed by the process, not corrupted by it. When I sat around that table, my sole intent was trying to make recommendations that best benefited the children in this country. It's offensive to say that physicians and public-health people are in the pocket of industry and thus are making decisions that they know are unsafe for children. It's just not the way it works."

Other vaccine scientists and regulators gave me similar assurances. Like Offit, they view themselves as enlightened guardians of children's health, proud of their "partnerships" with pharmaceutical companies, immune to the seductions of personal profit, besieged by irrational activists whose anti-vaccine campaigns are endangering children's health. They are often resentful of questioning. "Science," says Offit, "is best left to scientists."

Still, some government officials were alarmed by the apparent conflicts of interest. In his e-mail to CDC administrators in 1999, Paul Patriarca of the FDA blasted federal regulators for failing to adequately scrutinize the danger posed by the added baby vaccines. "I'm not sure there will be an easy way out of the potential perception that the FDA, CDC and immunization-policy bodies may have been asleep at the switch re: thimerosal until now," Patriarca wrote. The close ties between regulatory officials and the pharmaceutical industry, he added, "will also raise questions about various advisory bodies regarding aggressive recommendations for use" of thimerosal in child vaccines.

If federal regulators and government scientists failed to grasp the potential risks of thimerosal over the years, no one could claim ignorance after the secret meeting at Simpsonwood. But rather than conduct more studies to test the link to autism and other forms of brain damage, the CDC placed politics over science. The agency turned its database on childhood vaccines -- which had been developed largely at taxpayer expense -- over to a private agency, America's Health Insurance Plans, ensuring that it could not be used for additional research. It also instructed the Institute of Medicine, an advisory organization that is part of the National Academy of Sciences, to produce a study debunking the link between thimerosal and brain disorders. The CDC "wants us to declare, well, that these things are pretty safe," Dr. Marie McCormick, who chaired the IOM's Immunization Safety Review Committee, told her fellow researchers when they first met in January 2001. "We are not ever going to come down that [autism] is a true side effect" of thimerosal exposure. According to transcripts of the meeting, the committee's chief staffer, Kathleen Stratton, predicted that the IOM would conclude that the evidence was "inadequate to accept or reject a causal relation" between thimerosal and autism. That, she added, was the result "Walt wants" -- a reference to Dr. Walter Orenstein, director of the National Immunization Program for the CDC.

For those who had devoted their lives to promoting vaccination, the revelations about thimerosal threatened to undermine everything they had worked for. "We've got a dragon by the tail here," said Dr. Michael Kaback, another committee member. "The more negative that [our] presentation is, the less likely people are to use vaccination, immunization -- and we know what the results of that will be. We are kind of caught in a trap. How we work our way out of the trap, I think is the charge."

Even in public, federal officials made it clear that their primary goal in studying thimerosal was to dispel doubts about vaccines. "Four current studies are taking place to rule out the proposed link between autism and thimerosal," Dr. Gordon Douglas, then-director of strategic planning for vaccine research at the National Institutes of Health, assured a Princeton University gathering in May 2001. "In order to undo the harmful effects of research claiming to link the [measles] vaccine to an elevated risk of autism, we need to conduct and publicize additional studies to assure parents of safety." Douglas formerly served as president of vaccinations for Merck, where he ignored warnings about thimerosal's risks.

In May of last year, the Institute of Medicine issued its final report. Its conclusion: There is no proven link between autism and thimerosal in vaccines. Rather than reviewing the large body of literature describing the toxicity of thimerosal, the report relied on four disastrously flawed epidemiological studies examining European countries, where children received much smaller doses of thimerosal than American kids. It also cited a new version of the Verstraeten study, published in the journal Pediatrics, that had been reworked to reduce the link between thimerosal and autism. The new study included children too young to have been diagnosed with autism and overlooked others who showed signs of the disease. The IOM declared the case closed and -- in a startling position for a scientific body -- recommended that no further research be conducted.

The report may have satisfied the CDC, but it convinced no one. Rep. David Weldon, a Republican physician from Florida who serves on the House Government Reform Committee, attacked the Institute of Medicine, saying it relied on a handful of studies that were "fatally flawed" by "poor design" and failed to represent "all the available scientific and medical research." CDC officials are not interested in an honest search for the truth, Weldon told me, because "an association between vaccines and autism would force them to admit that their policies irreparably damaged thousands of children. Who would want to make that conclusion about themselves?"

Under pressure from congress, parents and a few of its own panel members, the Institute of Medicine reluctantly convened a second panel to review the findings of the first. In February, the new panel, composed of different scientists, criticized the earlier panel for its lack of transparency and urged the CDC to make its vaccine database available to the public.

So far, though, only two scientists have managed to gain access. Dr. Mark Geier, president of the Genetics Center of America, and his son, David, spent a year battling to obtain the medical records from the CDC. Since August 2002, when members of Congress pressured the agency to turn over the data, the Geiers have completed six studies that demonstrate a powerful correlation between thimerosal and neurological damage in children. One study, which compares the cumulative dose of mercury received by children born between 1981 and 1985 with those born between 1990 and 1996, found a "very significant relationship" between autism and vaccines. Another study of educational performance found that kids who received higher doses of thimerosal in vaccines were nearly three times as likely to be diagnosed with autism and more than three times as likely to suffer from speech disorders and mental retardation. Another soon-to-be published study shows that autism rates are in decline following the recent elimination of thimerosal from most vaccines.

As the federal government worked to prevent scientists from studying vaccines, others have stepped in to study the link to autism. In April, reporter Dan Olmsted of UPI undertook one of the more interesting studies himself. Searching for children who had not been exposed to mercury in vaccines -- the kind of population that scientists typically use as a "control" in experiments -- Olmsted scoured the Amish of Lancaster County, Pennsylvania, who refuse to immunize their infants. Given the national rate of autism, Olmsted calculated that there should be 130 autistics among the Amish. He found only four. One had been exposed to high levels of mercury from a power plant. The other three -- including one child adopted from outside the Amish community -- had received their vaccines.

At the state level, many officials have also conducted in-depth reviews of thimerosal. While the Institute of Medicine was busy whitewashing the risks, the Iowa legislature was carefully combing through all of the available scientific and biological data. "After three years of review, I became convinced there was sufficient credible research to show a link between mercury and the increased incidences in autism," says state Sen. Ken Veenstra, a Republican who oversaw the investigation. "The fact that Iowa's 700 percent increase in autism began in the 1990s, right after more and more vaccines were added to the children's vaccine schedules, is solid evidence alone." Last year, Iowa became the first state to ban mercury in vaccines, followed by California. Similar bans are now under consideration in thirty-two other states.

But instead of following suit, the FDA continues to allow manufacturers to include thimerosal in scores of over-the-counter medications as well as steroids and injected collagen. Even more alarming, the government continues to ship vaccines preserved with thimerosal to developing countries -- some of which are now experiencing a sudden explosion in autism rates. In China, where the disease was virtually unknown prior to the introduction of thimerosal by U.S. drug manufacturers in 1999, news reports indicate that there are now more than 1.8 million autistics. Although reliable numbers are hard to come by, autistic disorders also appear to be soaring in India, Argentina, Nicaragua and other developing countries that are now using thimerosal-laced vaccines. The World Health Organization continues to insist thimerosal is safe, but it promises to keep the possibility that it is linked to neurological disorders "under review."

I devoted time to study this issue because I believe that this is a moral crisis that must be addressed. If, as the evidence suggests, our public-health authorities knowingly allowed the pharmaceutical industry to poison an entire generation of American children, their actions arguably constitute one of the biggest scandals in the annals of American medicine. "The CDC is guilty of incompetence and gross negligence," says Mark Blaxill, vice president of Safe Minds, a nonprofit organization concerned about the role of mercury in medicines. "The damage caused by vaccine exposure is massive. It's bigger than asbestos, bigger than tobacco, bigger than anything you've ever seen."

It's hard to calculate the damage to our country -- and to the international efforts to eradicate epidemic diseases -- if Third World nations come to believe that America's most heralded foreign-aid initiative is poisoning their children. It's not difficult to predict how this scenario will be interpreted by America's enemies abroad. The scientists and researchers -- many of them sincere, even idealistic -- who are participating in efforts to hide the science on thimerosal claim that they are trying to advance the lofty goal of protecting children in developing nations from disease pandemics. They are badly misguided. Their failure to come clean on thimerosal will come back horribly to haunt our country and the world's poorest populations.

From the   Action Center

Alert!

 

A-CHAMP
Action Alert

The online version of Rolling Stone's "Deadly Immunity", by Robert F. Kennedy, JR., is already sparking a national debate on the use of thimerosal, a mercury containing preservative, in vaccines.  The online article can be found at http://www.rollingstone.com/politics/story/_/id/7395411.

This debate should be ratcheted up as the print version hits the newsstands starting today.  This will coincide with the unprecedented, simultaneous release of the article on Salon.com.
 
Rolling Stone, released in a few markets on June 15, should be widely available by this weekend.

Lujene Clark, co-founder of NoMercury and A-CHAMP (Advocates for Children's Health Affected by Mercury Poisoning), worked extensively with Mr. Kennedy and his office over the past several weeks in preparing the article for publication.  The print copy will contain a sidebar from Ms. Clark, providing perspective from her experience as the mother of a thimerosal-injured child and advocate for removing mercury from vaccines.

A-CHAMP encourages parents to obtain copies of Rolling Stone as soon as they are available to distribute to legislators and members of the medical community.  Please spread the word to family and friends of Mr. Kennedy's courageous article appearing simultaneously in Rolling Stone and on Salon.com. 

Do not wait for mainstream media to spread the word!  Mr. Kennedy's scheduled appearances on ABC World News Tonight, 20/20 and his Thursday, June 16th appearance on Good Morning America have been cancelled by ABC.  Officials at ABC stated their decision to cancel Mr. Kennedy's appearance on their network is because it is "too politically controversial." 

In our opinion, ABC is more concerned about protecting their huge advertising revenues from the pharmaceutical industry than reporting news that could protect pregnant women, infants and children from mercury tainted vaccines.  SHAME ON ABC!

Join us in asking our elected officials to remove this known neurotoxin from vaccines and to address the neurodevelopmental damage done to 1 in 6 American children.

The A-CHAMP Team
www.a-champ.org


5. Fun Activities

TACA FAMILY SOCIAL EVENT
 

Attention all TACA members! Diane Gallant has worked hard with South Coast Plaza in arranging FREE CAROUSEL RIDES for children with Autism and their siblings!!

Come join us for a morning of fun and horse rides at South Coast Plaza!

  • Upcoming Dates: The Saturday schedule is: (No carousel on June 25) July 23rd, August 20 th, September 24 th, October 22 nd and November 19 th.
  • Times: 8:30 am-9:30 am (BEFORE the mall opens)
  • Local: South Coast Plaza by the carousel ( NOT the Crystal Court carousel!)
  • Costs: FREE!!!!!!!!!
  • Park: Park by ZTejas Restaurant and the Bank of America ATM’s off Bristol
  • Note: Kids can ride as often as they would like and based on availability.

NO NEED TO RSVP! JUST COME AND PLAY!!


Announcing A New FUN Monthly TACA Family Event!

 

June 23 Thursday 6:30-8:30pm

Pump it UP in Huntington Beach will be our TACA playground for 2 hours the last Thursday of every month from 6:30pm to 8:30 pm.

Pump It Up has the latest inflatable designs that are engaging, challenging and interactive. Kids love to play on recreational inflatables in our indoor arenas, and they continue to enjoy this fun activity time after time, visit after visit. Kids of all ages love ...Bouncing ...Sliding ... Climbing and ...Tumbling. Indoor inflatables include a custom inflatable bounce house, inflatable slide, inflatable obstacle course, inflatable boxing arena, and an inflatable jousting arena. There are also tricycles and scooter cars etc. on the floor. It’s a great chance to meet other parents and another great play-date opportunity for our kids!

Details: Ages 2+ are welcome, and equipment accommodates even adult sizes should you like to accompany or assist your child on this large equipment. Siblings are welcome. Each jumping child for our group is $6. When you come you will check in to sign a waiver for insurance, and remove shoes before entering arena. We will not be having any music playing at this event (to reduce auditory exposure.) 35 children will be able to attend each event and will be offered on a first-come, first-served pre-sign up basis!

Email Lynn Milucky (not Pump It Up) at funnybunnypaw@yahoo.com or call Lynn’s cell 714-925-3882 to reserve your spot!

Pump It Up is located at the Northwest corner of Gothard St and Heil Ave in the "HB Business Center."  Just 1 mile from the intersection of the 405 Freeway and Beach Blvd. (go around to the back of the business complex, follow Pump It Up signs)

16351 Gothard Street Suite C
Huntington Beach , CA 92647 // 714-847-9663 http://www.pumpitupparty.com/huntingtonbeach.html


Retreat Exploring Community Living For Families With ASD Children

 

From Jacquelyn McCandless and Jack Zimmerman:

In June of last year, twelve families gathered at the Ojai Foundation in Southern California to explore the possibilities of creating a temporary community that would provide an active healing environment for their ASD children. Some of the families were complete, some had more than one ASD child, some consisted of only one parent and some included one or more NT siblings. The children ranged from 4 to 17 years of age. Activities during the three-and–a-half days included swimming, drumming, council (a highly effect form of group communication), a variety of OT activities, biomedical information sessions, food preparation and many other aspects of community life. Parents played a major role in planning all aspects of the retreat, including raising funds for scholarships.

This fruitful experience has led us to offer the “Second Annual Gathering for ASD Families” next July 23—30, again at the Ojai Foundation, a 40 acre retreat center about 90 miles northwest of Los Angeles that specializes in retreats for children. The synergy of families with a common intention living together in a place of natural beauty and rustic accommodations provides a strong healing environment. The GF/CF/SF diet is implemented by the families involved under the direction of an experienced food professional. An experienced Foundation Staff and therapeutic specialists augment the parents in facilitating the program.

This year’s week-long retreat will include daily water therapy and recreational swimming in a nearby pool, an excursion to the beach, daily councils, information sessions for parents, OT group activities, arts and crafts, working in the gardens and open time for spontaneous community experience. Interns augment the staff and provide opportunities for parents to meet together without concern for the children’s well being. Jack and Jacquelyn, along with the parents and grandparents, are part of the “unpaid staff.”

For information concerning housing arrangements, activities and fees, please email Jack Zimmerman at: jmzimmerman@yahoo.com or by phone at (818) 999-5436.


Swim Lessons

 

Let me know if you or anyone in your group is interested in swimming lessons this summer.  I will also be renting out my pool on Saturday's for groups.  If you'd like to set up a family fun event let me know.  Thanks for your support.

Terri Roe
Miss Terri's Swim Programs
(909) 981-7482


6. TACA MOM IN GREAT NEED:

UPDATED JUNE 2005: You have read about Ruthie Daniel in the past 6 months worth of TACA newsletters. The bad news has come: HER CANCER IS NOT GONE AFTER SIX VERY HARD MONTHS OF CHEMOTHERAPY.

We need to help this very special, single mother of two boys – one with autism. She has a lot of treatment choices – radiation and others to consider. She really needs help.

HOW YOU CAN HELP:

  1. GFCF Food for her kids
  2. Typical groceries for her family
  3. ONE-ON-ONE babysitting for her autistic son after 3pm.
  4. Prayers for her

Ruthie’s contact information:
Phone: 949-347-8532
Address: 25574 Via Cresta, Laguna Niguel, CA 92677

FOOD ALLEGIES: NO gluten, casein, yeast, dyes, apples or cotton seed oil.

FOOD Suggestions:

  • Natures highlights brown rice pizza crust & organic tomato sauce
  • Diesel meat patties
  • Sheltons Chicken hot dogs
  • Pear juice
  • Cashew butter & low sugar, natural jams
  • Ener-G white rice YEAST FREE loaf
  • Potato Stix
  • Fruits: Pears, white peaches, green grapes
  • Yeast free GFCF Pretzels
  • Old Fashion Cake & Cookie mix - GFCF
  • Blueberry Muffin Mix – GFCF
  • Trader Joes GFCF Banana Waffles
  • Vegies: Carrots, cauliflower, peas
  • Trader Joes Soy Yogurt
  • Trader Joes Vegetable Chips (ROUND ONES
  • Trader Joes Mini White Round Corn Chips
  • Organic Chicken Breasts
  • Trader Joes Frozen Mangos
  • Organic Ketchup
  • Pacific Rice Milk
  • Trader Joes Lime Popsicles
  • BOTTLED DISTILLED WATER (SHE GOES THRU A LOT OF WATER DUE TO HER TREATMENT. THERE IS A GREAT NEED FOR THIS.)

7. TACA SURVEY RESULTS – The latest

Thank you to all who participated in this important survey! It helps us plan our activities to meet your needs!


8. New Books & Web Resources

There are so many new books and web resources, I have decided to make a section for your review. They are all worth looking at!

BOOK RESOURCE #1:

BOOK SUBMISSIONS NEEDED FOR: I also write a column on special needs for an African-American Parent Magazine - www.celebratingchildren,com .  We are writing a book for  parents and families with special needs children and we are seeking article submissions.  We are specifically looking at getting diverse articles and focusing on cultural issues that often get overlooked or aren't even discussed openly.  Would you please consider posting the following on your list?  Thanks so much!!

Shannon Nash shannon.nash@gmail.com

BOOK RESOURCE #2:

Autism Book for Parents IN SPANISH: Los Trastornos del Espectro de Autismo de la A a la Z (Autism Spectrum Disorders From A to Z in Spanish ) by Barbara T. Doyle and Emily Doyle Iland  is now available.  It is a wonderful resource for Spanish-speaking families who have not been able to find the in depth, quality information that they need.  I am the mother of a young man with autism and wrote Autism Spectrum Disorders from A to Z with my sister, Barbara T. Doyle, a professional educator in the field of autism for more than thirty years. I am fluent in Spanish and I translated the 500 page book myself (with help from many native speakers!) This has protected the integrity of the content in translation.

WEB RESOURCE #1:

WATCH THE RECOVERED AUTISTIC CHILDREN FROM THE DAN! Conference: http://www.autism-recoveredchildren.com/

This video is well worth the 59 minutes and something you should send to family, friends, co-workers and legislators. Remind them that this video features 3 families from the TACA group.

Also from Autism Research Institute and the amazing, wonderful Dr Bernard Rimland:

1.  We recently began our second Internet webcast of a Defeat Autism Now! (DAN!) conference.  The webcast includes all of the presentations from the Defeat Autism Now! (DAN!) conference which was held last month in Boston.  The presentations can be video streamed (DSL/cable or dial-up) or downloaded onto your computer’s hard drive.  There are 25+ hours of presentations from many of the top researchers and clinicians in the field of autism, including Drs. Sidney Baker, Tim Buie, Stephanie Cave, Lisa Lewis, Jon Pangborn, Andrew Wakefield and many more.  There is no charge to view the webcast!!!  The web address is: www.DANWebcast.com

2.  The 2005 edition of the DAN! Manual, titled ‘Autism: Effective Biomedical Treatments,’ written by Drs. Jon Pangborn and Sidney Baker, has just been published.  (This book is often referred to as the DAN! Protocol.)  The cost of the 310-page book is $30.  It can be can be purchased through Amazon.com and from our website (www.AutismResearchInstitute.com).

3.  Save the Dates!  The next full DAN! conference will be held on October 28-30, 2005 in Long Beach, California.  There will be mini-DAN!s in Charlotte, NC on July 16-17 and Toronto, Canada on September 17-18.

If you would like additional information about autism, please write to us at: ARI, 4182 Adams Avenue, San Diego, CA 92116, USA or send a fax to: 619-563-6840.

WEB RESOURCE #2:

Here's Senator Joseph Lieberman from the Imus in the Morning on MSNBC and WFAN.

http://www.peakwriting.com/MVI_1979.avi
http://www.peakwriting.com/MVI_1980.avi


9. Upcoming Fee-based Conferences & Seminars
      in
Southern California


Great Plains Labs – Latest in Autism Treatments - Anaheim, CA on June 18-19, 2005.

For more info: www.greatplainslaboratory.com

Saturday, June 18, 2005

  • 8:00-9:00 Registration and Exhibits
  • 9:00-10:30 Dr. William Shaw “The Importance of Biological Interventions in Autism”
  • 10:30-10:45 Break and Exhibits
  • 10:45-12:00 Lori Knowles “A Mother’s Success Story: How I Was Able to Make a Difference in My Son’s Life”
  • 12:00-1:15 Lunch and Exhibits
  • 1:15-2:45 Dr. William Shaw “The Role of Supplements in Healing Your Child”
  • 2:45-3:00 Break and Exhibits
  • 3:00-4:30 Dr. Kurt Woeller “Autistic Spectrum Disorders-The Need for a Comprehensive Approach to Health and Recovery”
  • 4:30-6:00 Dr. and Mr. David Geier: “The Link Between Vaccines and Neurodevelopmental Disorders”

Sunday, June 19, 2005

  • 8:30-9:00 Registration and Exhibits
  • 9:00-10:30 Lisa Ackerman “Support and Medical Intervention - A Parent’s Perspective”
  • 10:30-10:45 Break and Exhibits
  • 10:45-12:00 Doreen Granpeesheh “ ABA: One Piece of the Autism Puzzle”
  • 12:00-1:15 Lunch and Exhibits
  • 1:15-2:30 Dr. Rashid Buttar “Chelating Heavy Metals With DMPS”
  • 2:30-2:45 Break and Exhibits
  • 2:45-4:15 Kelly Dorfman “Sensory Nutrigation-How Nutrition Affects Sensory Development and Sensory Issues Affect Eating”
  • 4:15 - 6:00 Q & A Panel

To register online https://secure.hostdepot.com/11/498/conference/anaheim/register.asp


Area Board XI  State Council on Developmental Disabilities of  Orange County
Presents: Parent Empowerment! Hosted by Whittier Law School

A Special Panel of Attorneys; Rene Folse, Valerie Vanneman, Lillian Meredith, Jane Dubovy,
Sholeh Iravantchi and others
will speak on Orange County's  SPECIAL EDUCATION ISSUES

A few Parent Topics:

  • IDEA and the  Re Authorization
  • Current Issues  & Information
  • ”What Parents will be faced with in Special Education today"
  • " How to be pro active and empowered in your IEP"
  • Overview of Special Ed  and the Law
  • Parent Question & Answers

Date: June 18, 2005 Saturday
Time:   10:00am to 1:00pm
Location: Whittier Law School, 3333 Harbor Blvd. Costa Mesa
Translation will be provided.

For more information, Contact Area Board XI 714-558-4404 or Andrea Kumetz-Coleman 714-893-5065


Franks Low Carb Market Place Gluten-Free / Casein Free Market - GRAND OPENING - Saturday, July 2 nd 12-5pm

Celebrate the 4th of July at FRANK’S during the Grand Opening of our Gluten Free / Casein Free

SPECIALITY FOOD SECTIONS

FREE GLUTEN FREE /CASEIN FREE SOFT SERVE ICE CREAM

Hundreds of Samples from ALL THE LEADING GFCF Manufacturers INCLUDING: Enjoy Life Foods, Gluten-Free Pantry, Kinnikinnick, Organ, Glutino, Dr. Schar, Glutano, and many, many more……

FREE BALOONS FOR THE KIDS FREE GIFT BASKETS Three lucky shoppers will win $50 GIFT CERTIFICATES AT FRANKS!

Address: 27001 Moulton Parkway Laguna Hills 92656 / Phone 949-831-3663


On July11th, l2th and l3th HALO (Helping Autism through Learning and Outreach) will hold a conference in Manhattan Beach on Using the Rapid Prompting Method (RPM) to Teach Persons with Autism. On the evening of July llth, Soma Mukhopadhyay will lecture at Raleigh Movie Studios on the science behind RPM, and its practical applications in teaching children with autism academics and communication. On the l2th and l3th, Soma will work with l4 children on an individual basis. Those registered for the conference will be able to observe these sessions by remote video feed.

Soma and her son Tito (who is nonverbal and a published author and poet) were brought to the US by Cure Autism Now, to see if the method that Soma had developed would work with children here. Soma and Tito have been featured on "60 Minutes", "Good Morning America", "National Geographic", "Good Morning America", "Scientific American", and countless other media. Soma and HALO have helped hundred of children around the country.

For more information on registration, please go to the HALO website at halo-soma.org, or e-mail Sharon at pdsnluv@adelphia.net.


The SURFERS HEALING SURFCAMP dates are posted on our website www.surfershealing.org . Please fill out application and e-mail it to jennifer@surfershealing.org or fax it to 949-728-1200. Thanks and we can't wait for summer.


DEFEAT AUTISM NOW! : October 2005 Long Beach –OR- Los Angeles conferences. The web conference also includes the Recovered Autistic Children event.  To learn more about the DAN! web conference and to subscribe, visit: www.ARIWebConference.com or www.danconference.com


10. Personal Note

The summer is almost here and it is “Dr. Jerry” season for me. With a myriad of activities (7activities in 10 days) I can say this – I AM BUSY! But these efforts are well worth it. With the “busy season” comes an important announcement from Dr Jerry Kartiznel I wanted to make sure I share with all of you.

Here it is:
Some of you already know and yes for the last week my phone has been ringing off the hook. But officially, I wanted to share with you some very exciting news.  After significant consideration, Dr. Jerry has decided to move to Austin, TX and open a medical practice at the Thoughtful House for treating ASD children.  He anticipates opening the new practice in August or September 2005.  For those of you not familiar with Thoughtful House, it is a new autism center whose research is headed by Dr. Andrew Wakefield. (Yes, that Andrew Wakefield.) They are in the process of building a treatment and research facility.  Dr. Arthur Krigsman (the great GI doctor from NY) is also going to spend a significant amount of time each time each month seeing patients at Thoughtful House. I must admit that I am a bit disappointed Dr. Jerry won’t be coming to Orange County to practice.  However, I have spoken with him, and fully understand and support his call to Thoughtful House.  The entire Kartzinel family believes this is absolutely the right move for them at this time…and I agree.   You can check them out at www.thoughtfulhouse.org.

Dr. Jerry is going to Texas with the full blessing of his partner for the last 5 years, Dr. Jeff Bradstreet.  It is their belief it is great for the autism community to have a person of Dr. Jerry’s caliber in Texas at the Thoughtful House.  They will continue to collaborate in research and patient care.  His last day with ICDRC is June 16.  However, he is still coming to CA and will be keeping the schedule sent out a few weeks back.  In addition, until his new office is open and his move to TX completed, he will continue to see patients in FL and on the phone. (Please note: NO NEW APPOINTMENTS WILL BE ACCEPTED DURING HIS CA  JUNE VISIT.)

Dr. Jerry has committed to continue coming to Orange County to see patients one or two times per year. The donations and registrations received on June 25 th for the One Day medical seminar will be collected via TACA California Medical Fund and directed to Dr Jerry’s new location at the Thoughtful House.

The last five years of being part of the Dr Jerry California Adventures has been amazing for me. It has been a lot of work but I would do it all over again ten times. Not only has it benefited my son Jeff – it has benefited many local children and they are getting better. That is why I will continue to be involved in helping Dr Jerry’s return to California regularly. In addition I will continue to help raise funds for his important efforts starting first with scholarship patients and help they need. Once those objectives are met my goal is to someday have Dr Jerry include Southern California on his next move. ( Please remember, I don’t select scholarship patients – I just fundraise for it.)

If you have any questions, please let me know. The purpose of this note is to let you know of the great news and I hope to see you at the parent seminar on the 25th.

---

I hope I see you at the exciting seminar on June 25 th including Dr Jerry’s colleague and introduce one of my personal heroes Dr. Andrew Wakefield. It will be a great event!

Hugs, thanks, and be SAFE,
Lisa A Jeff's mom

And Editor: Kim Palmer (thanks Kim!)

 

Web Page for TACA Group: www.tacanow.com

check it out and let us know your thoughts

Talk About Curing Autism (TACA) provides general information of interest to the autism community. The information comes from a variety of sources and TACA does not independently verify any of it. The views expressed herein are not necessarily TACA’s. TACA does not engage in lobbying or other political activities.

IF YOU DO NOT WANT TO RECEIVE THESE EMAILS, just respond and I will be happy to remove you from the list.

P.S. TACA e-news is now sent to 1,749 people!
(This number represents families – 95%, and the rest are professionals.)