Here is your update on the TACA (TALK ABOUT CURING AUTISM) Group for May 2003 - #3. As always, email your thoughts and or questions.
I want to make this e-newsletter informative for you. Let me know your thoughts on how I can improve it.
==================================================================
IF this email is NEW to you and you don't recognize the name... WELCOME! These emails happen two to four times a month for Southern California Autism support called TACA.
We focus on parent support, parent mentoring, gluten / casein free diets, the latest in medical research, special education law, reviews of the latest treatments, and many other topics as it relates to Autism.
Talk About Curing Autism (TACA) provides general information of interest to the autism community. The information comes from a variety of sources and TACA does not independently verify any of it. The views expressed herein are not necessarily TACA’s.
IF YOU DO NOT WANT TO RECEIVE THESE EMAILS, just respond and I will be happy to remove you from the list. EMAIL ADDRESS IS: contact us
---------------------------------------------------------------------------------------------------------------------
TACA has an official web site at www.talkaboutcuringautism.org
---------------------------------------------------------------------------------------------------------------------
In this edition of TACA e-news:
-----------------------------------------------------------------------------------------------------------------
1) Next TACA COSTA MESA support group meeting:
Date: Saturday, June 14th, 2003 (always the 2nd Saturday of each month)
Time: 2:30 - 5:30
Kirkman
Labs – the new world of supplementation
Presented by Kirkman
Labs – Rhonda
PLACE: VINEYARD NEWPORT CHURCH - 102 East Baker Avenue - Costa Mesa
(Please do not contact the church for meeting details. They have graciously offered use of their facility, but are not affiliated with TACA.)
Directions:
405 FWY South, Exit Bristol
Right on Bristol
Left on Baker
Go under FREEWAY.
The Vineyard church is on the corner just after the FWY - turn left onto the freeway access road, MAKE FIRST right into the Vineyard's parking lot.
And remember, we are still a non-faith based group!
CONTACT PHONE FOR DAYS OF THE MEETING ONLY: 949.678.9010
Please do NOT use the cell contact for days outside of the meetings. Thank you!
-----------------------------------------------------------------------------------------------------------------
2) UPCOMING TACA Costa Mesa Meeting Schedule:
May 31, 2003: Rescheduled
Dr Jerry Kartzinel Medical Seminar
(see announcement in the next section on details!)
July 12, 2003: Child Neuropsychologist: Dr Christine
Majors
- What is in a test and
outside evaluations? Why are they important?
- Where should you start? How should you continue?
August 8, 2003: Who pays for WHAT
SERVICES?
Parent options for PAYING services for their children.
Much more is being planned for September – December of 2003! Stay tuned!
--------------------------------------------------------------------------------------------------------------------
TACA has FIVE So. California meeting locations:
1) Costa Mesa: 2nd Saturday of each month (info in item #1)
2) West Hills (the valley man!): the 1st Sunday of every month, on the Cal State University Northridge Campus in the Early Intervention Psyche Clinic... - Info: Contact Us
3) San Diego: 4th Tuesday evening – 6:30- 8:00pm – Info: Contact Us
4) Corona: 3rd Saturday – 2:30pm – 5:30pm – Info: Contact Us
5) Torrance: 3rd Monday of each month at Whole Foods Market on PCH In Torrance – 6:30-9:00pm. Info: Contact Us
3) Dr Jerry Kartzinel MEDICAL CONFERENCE INFORMATION:
Special Medical Seminar
Topic: Dr Jerry Kartzinel – Pediatrician from ICDRC
International Child Development Resources Center
Palm Bay, Florida
COMMON MEDICAL PROBLEMS & TREATMENT OPTIONS
FOR CHILDREN WITH AUTISM
- Guidelines and suggestions for PARENTS
Date: Saturday May 31, 2003
Time: 9:30am – 3:00pm (lunch on your own)
Location: TACA meeting local – Newport Vineyard Church - 102 East Baker Avenue - Costa Mesa
Costs: After May 21 and On-Site: $35.00
Scholarship opportunities are available if needed
Registration: Payment is $35 per person
PAY AT THE DOOR TO THE FIRST 40 folks (that is all we have left!)
Note: This event will sell out. Please be sure to mail your check early. Thank you.
Questions?? tacanow@cox.net
Who is Dr Jerry? www.icdrc.org
Babysitting: Unfortunately no babysitting is available for this event
FINAL NOTE: Do not mail a check for this event if you want to attend! Come to the door and pay the $35 to attend! PLEASE RSVP via email at contact us
---------------------------------------------------------------------------------------------------------------------
4) General News:
Special note from our very own TACA Family on PBS!!!
Hi everyone,
Last month the boys and I worked with a local producer on a program called Full
Focus. This program airs on KPBS. (This is the San Diego PBS
station for those of you north of us.) I received confirmation today that
our episode is going to air on Tuesday, June 3rd @ 6:30 p.m. and again @ 11:30 p.m.
The show is looking at the autism epidemic and the possible link to
vaccines. Dr. Woeller, Dr. Trauner and my family will be featured during
the first fifteen minutes. The second fifteen minutes will be a panel
discussion about these topics. Dr. Rimland will serve on the in-studio
panel.
The camera crew spent five hours with us on the shoot. I have no idea how
the final product will turn out. I will be a tad nervous next
Tuesday. The producer seemed very sympathetic to our cause. I hope
the episode turns out nicely for us TACA families.
Take care,
Becky
SEHO CONTRACT RENEWED (FOR A 13 month period!)
As most of you probably know, there was some uncertainty about our continuing to provide mediation and hearing services in the field of special education.
The union that represents state attorneys and ALJ's filed a complaint last summer alleging that our contract with the Department of Education was invalid because it conflicted with Government Code provisions that require state work to be done by civil servants.
About two weeks ago, the Executive Officer of the State Personnel Board issued an opinion that our contract was invalid under those laws. He failed, however, to address the Education Code Section that requires the Department of Education to contract out these services to a private non-profit organization.
As our current contract is set to expire at the end of this month, there was some concern about a renewal of the contract in light of the opinion by the Executive Officer of the State Personnel Board.
The Department of Education and McGeorge filed an appeal of the opinion to the members of the State Personnel Board. By so doing, the opinion of the Executive Officer was stayed.
Today, McGeorge received a new contract that continues our responsibilities to provide mediation and hearing services for a period of 13 months, ending at the end of June, 2004. The contract was approved by the Department of General Services.
Because we anticipated the continuance of the contract by the State Department of Education, we made no changes in how we calendared hearings or mediations. We also continued the training of five new hearing officers who will be ready to conduct hearings in about mid June.
Thank all of you for your patience and support. Throughout this period of crisis, I am proud to say that all of our mediators, hearing officers and support staff continued to provide the high level of service to which you are all entitled. They will continue to do so.
Please spread the word to others that you know who might not be on the Due Process Advisory Committee.
If you have any questions about this or any other matters, please feel free to call me or any member of the SEHO staff.
Again, thank you for your patience and support.
Glenn Fait, Director
California Special Education Hearing Office
Thanks to all parents who replied to call of action request from Karen Nagy!
IDEA LAW RE-AUTHORIZATION - update
SENATE BILL EXPECTED EARLY JUNE
The U.S. Senate's Health, Education, Labor and Pensions (HELP) Committee has announced plans to introduce a bill to reauthorize IDEA on or about June 3, 2003, following next week's recess. The bill will proceed to Committee markup approximately 2 weeks after introduction, giving advocates a brief time for review and reaction. As soon as the bill is introduced we will provide a summary of key issues and concerns.
Either way you feel – please let the legislators let them know what your families needs are before it is too late!
Here are some good resources for the IDEA status.
IDEA National Action alerts http://www.dredf.org/ They are also acting as a National Clearinghouse and keeping track of meetings.
Sample letter specifically to California with statistics.
http://www.geocities.com/vshr1350/casample.htm
IDEA sample letters
http://www.uniquelygifted.org/IDEAsampleletter.htm (this is the general letter)
http://www.uniquelygifted.org/IDEAsampleletter2.htm (this is the letter specifically
geared toward the attorney fee cap issue, which is one of the most
critical issues before the Senate)
IDEA Sample flyer
http://www.uniquelygifted.org/IDEASenateflier.htm
Here are some other resources:
http://www.geocities.com/vshr1350/
(NOTE: TACA aims to make families aware of any potential legislation that could affect families with autism – we do not engage in lobbying in any way. Please take time to educate yourself on important issues and draw your own conclusions.)
In the Fundraising and press announcement:
The Autism Coalition is pleased to announce that its Night of Too Many Stars comedy show will be broadcast on NBC-TV at 8:00pm – 9:00pm (Eastern Time) on Saturday, May 31, 2003. (Please check local listings to confirm the exact time of the broadcast in your area.)
We encourage you to invite family, friends, neighbors and colleagues to view the Night of Too Many Stars on NBC-TV on May 31. Hosting a house party for the broadcast premiere of this show is a humor-filled way to promote autism research and education to people in your community. Indeed, we are billing this as a night of comedy for a serious cause. The Autism Coalition will gladly supply you with information about autism and our efforts to find a cure. We will send you a packet that includes information about autism and what party guests can do to help advance vital autism research and education programs.
The Night of Too Many Stars features many past and present stars from Saturday Night Live and other performers; this comedy show was taped before a live audience and was the highlight of the Autism Coalition’s big benefit event held in New York City this past February. A galaxy of stars, including Adam Sandler, Dana Carvey, Conan O’Brien, Jack Black, Jimmy Fallon, Tina Fey, Darrell Hammond, Tim Meadows, Molly Shannon, Maya Rudolph, Jon Stewart, David Spade, Kevin Nealon, Macaulay Culkin, and John McEnroe performed in the show. NBC News Anchor Brian Williams served as emcee during the dinner event and made cameo appearances in several hilarious SNL-style skits.
Several moving public service announcements will be aired during the broadcast that inform viewers about autism and what they can do to help us accelerate efforts to find the causes of this mysterious neurobiological disorder to lead to a cure.
Indeed, the rate of autism is skyrocketing, and we aren’t sure why. Just a decade ago, experts estimated that 1 in 10,000 children in the U.S. were diagnosed with autism. Today, that figure has climbed to 1 in 250 children. Autism robs these children of their ability to socialize, communicate, play and think. It leads to incredible stress for parents and siblings, and extended family members and other caregivers. There is no known cause or cure for autism—yet.
Please do not hesitate to contact our Program Associate, Michael Russo, at 914/935-1462 (or via e-mail at mrusso@autismcoalition.com) for more information about the broadcast and house parties. We hope that you will host, or attend, a house party and support our efforts to raise public awareness about this misunderstood disorder. (Please see attached sample invitation and house party planning tips.) On behalf of the tens of thousands of children who have been robbed of their ability to communicate, we thank you for supporting our efforts to find the causes of, and a cure for, autism.
---------------------------------------------------------------------------------------------------------------------
5) VACCINE NEWS: - Two artcles
http://www.timesonline.co.uk/article/0,,7-694085,00.html
|
|
|
|
|
6) New Resources for Southern California
Big Fun Gymnastics introduces “the Gene Pool” – Swimming Lessons for special needs kids
For safety, for fun and just in time for summer – SWIM LESSONS!! These are provided by qualified, special needs friends to help your child become swim ready. Here are the locations, date and times for your review:
Newport Beach: June 19 – Sept 18 – on Tues 12:30pm-6:00pm / Thurs 10:00am-2:00pm
Van Nuys: June 2 – Sept 18 – on Mon & Thur 9:00am – 12:00pm
Pasadena: June 4 – Sep 19 – on Wed & Fri 9:00am – 12:00pm
Culver City: June 7 – Sep 20 – on 1:15-2:45 on Saturdays only
El Segundo: June 7 – Sep 20 – on 1:15-2:45 on Saturdays only
Fees are $25 for 25 minutes or $50 for 50 minutes
No swimming experience required!!
For additional information PLEASE CONTACT Big Fun at 310-837-7849
Applied Behavioral Analysis (ABA) Provider has some availability:
Currently ABC has a few openings for families in Northern Orange Co. and Long Beach area. The following are a list of cities we are accepting new enrollment in:
Downey
Cerritos
Cypress
Seal Beach
Garden Grove
For more information – PLEASE CALL:
Laura Roberts
Autism Behavior Consultants (ABC)
3440 Torrance Blvd.
Suite 104
Torrance, CA 90503
(310) 937-3633
---------------------------------------------------------------------------------------------------------------------
6) CONFERENCES IN SOUTHERN CALIFORNIA:
2003 TRAINING DIVISION CALENDER
Solutions for Language Training
July 22-23, 2003
Teaching Play and Social Skills
July 24, 2003
Assessment of Basic Language and Learning Skills (ABLLS)
July 28, 2003
Teaching Children with Language Delays
August 25-28, 2003
Teaching Verbal Behavior
July 29-31, 2003
All workshops run 9:00 4:00.
The workshops will be held at:
Centre Concord - 5298 Clayton St. - Concord, CA 94521
For additional information regarding these courses, please check out our
website at http://www.behavioranalysts.com
Register early courses have a participation limit > of 20!
To register: Contact Laurie Winkler at winkler@behavioranalysts.com or
(925) 210 9370 ext. 100
Questions: Contact Stacy Carroll at carroll@behavioranalysts.com or
(925) 210-9370 ext.109
MAJOR CONFERENCE IN SOUTHERN CALIFORNIA BY GREAT PLAINS LABS!
Did you know the DAN! (Defeat Autism NOW) Conference is not being held in San Diego this year? Instead it will be held in Oregon! Here is a great conference to attend held right here in Southern California!
June 21-22, 2003 in Anaheim - National Autism Conference on the Recent Findings in the biological and behavioral therapies for Autism, PDD and Hyperactivity Disorders.Organized by the Great Plains Laboratory, Inc. with collaboratorion of the Talk About Curing Autism and Center for Autism and Related Disorders
Registration fees
After May 1, 2003 - Internet registrations $189.00, mail, fax or phone $199.00
Spanish session only (Saturday night) $25.00 (this fee does not apply if
you register for the conference)
No refunds are given after May 22, 2003
For more information and registration: www.greatplainslaboratory.com
-----------------------------------------------------------------------------------------------------------
7) FREE SOCIAL EVENTS FOR TACA FAMILIES!!
South Coast Plaza FREE Carousel rides!
Attention all TACA members! Diane Gallant has worked hard with South Coast Plaza management in arranging FREE CAROUSEL RIDES for children with Autism and their siblings!!
Come join us for a morning of fun and horse rides at South Coast Plaza!
Dates:
Next date is: Saturday, 6/21/2003
Times: 8:30am-9:30am (BEFORE the mall opens)
Local: South Coast Plaza by the carousel (NOT the Crystal Court carousel!)
Costs: FREE!!!!!!!!!
Park: Park by ZTejas Restaurant and the Bank of America ATM’s off Bristol
Note: Kids can ride as often as they would like and based on availability. Come join us for some free fun!!
NO NEED TO RSVP! JUST COME AND PLAY!!
______________________________________________________________________
Hugs, thanks and be safe -
Lisa A Jeff's mom
Web Page for the TACA GROUP: www.talkaboutcuringautism.org - check it out!
Talk About Curing Autism (TACA) provides general information of interest to the autism community. The information comes from a variety of sources and TACA does not independently verify any of it. The views expressed herein are not necessarily TACA’s.
TACA does not engage in lobbying or other political activities.
P.S. TACA e-news is now at 627 families
Of course Autism is growing – this list was 10 families in November 2000!