Here is your update on the TACA (TALK ABOUT CURING AUTISM) Group for May 2003 - #2. As always, email your thoughts and or questions.
I want to make this e-newsletter informative for you. Let me know your thoughts on how I can improve it.
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IF this email is NEW to you and you don't recognize the name... WELCOME! These emails happen two to four times a month for Southern California Autism support called TACA.
We focus on parent support, parent mentoring, gluten / casein free diets, the latest in medical research, special education law, reviews of the latest treatments, and many other topics as it relates to Autism.
Talk About Curing Autism (TACA) provides general information of interest to the autism community. The information comes from a variety of sources and TACA does not independently verify any of it. The views expressed herein are not necessarily TACA’s.
IF YOU DO NOT WANT TO RECEIVE THESE EMAILS, just respond and I will be happy to remove you from the list. EMAIL ADDRESS IS: contact us
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TACA has an official web site at www.talkaboutcuringautism.org
REMINDER PLEASE DISCONTINUE USING lisa.ackerman@anysite.com – ALL NEW CORRESPONDENCE needs to be directed to tacanow@cox.net
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In this edition of TACA e-news:
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1) Next TACA COSTA MESA support group meeting:
Date: Saturday, June 14th, 2003 (always the 2nd Saturday of each month)
Time: 2:30 - 5:30
Kirkman
Labs – the new world of supplementation
Presented by Kirkman
Labs – Rhonda
PLACE: VINEYARD NEWPORT CHURCH - 102 East Baker Avenue - Costa Mesa
(Please do not contact the church for meeting details. They have graciously offered use of their facility, but are not affiliated with TACA.)
Directions:
405 FWY South, Exit Bristol
Right on Bristol
Left on Baker
Go under FREEWAY.
The Vineyard church is on the corner just after the FWY - turn left onto the freeway access road, MAKE FIRST right into the Vineyard's parking lot.
And remember, we are still a non-faith based group!
CONTACT PHONE FOR DAYS OF THE MEETING ONLY: 949.678.9010
Please do NOT use the cell contact for days outside of the meetings. Thank you!
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2) UPCOMING TACA Costa Mesa Meeting Schedule:
May 31, 2003: Rescheduled
Dr Jerry Kartzinel Medical Seminar
(see announcement in the next section on details!)
July 12, 2003: Child Neuropsychologist: Dr Christine
Majors
- What is in a test and
outside evaluations? Why are they important?
- Where should you start? How should you continue?
August 8, 2003: Who pays for WHAT
SERVICES?
Parent options for PAYING services for their children.
Much more is being planned for September – December of 2003! Stay tuned!
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TACA has FIVE So. California meeting locations:
1) Costa Mesa: 2nd Saturday of each month (info in item #1)
2) West Hills (the valley man!): the 1st Sunday of every month, on the Cal State University Northridge Campus in the Early Intervention Psyche Clinic... - Info: Contact Us
3) San Diego: 4th Tuesday evening – 6:30- 8:00pm – Info: Contact Us
4) Corona: 3rd Saturday – 2:30pm – 5:30pm – Info: Contact Us
5) Torrance: 3rd Monday of each month at Whole Foods Market on PCH In Torrance – 6:30-9:00pm. Info: Contact Us
3) Dr Jerry Kartzinel MEDICAL CONFERENCE INFORMATION:
Special Medical Seminar
Topic: Dr Jerry Kartzinel – Pediatrician from ICDRC
International Child Development Resources Center
Palm Bay, Florida
COMMON MEDICAL PROBLEMS & TREATMENT OPTIONS
FOR CHILDREN WITH AUTISM
- Guidelines and suggestions for PARENTS
Date: Saturday May 31, 2003
Time: 9:30am – 3:00pm (lunch on your own)
Location: Orange County, CALIFORNIA – (you must RSVP to receive directions)
Costs: $25 per person BEFORE May 20, 2002
After May 21 and On-Site: $35.00
Scholarship opportunities are available if needed
Registration: Payment is $25 per person
Please make your check out to ICDRC
Mail to: TACA – Dr Jerry Seminar
PO Box
12409 Newport Beach, CA 92658-2409
BE SURE TO INCLUDE YOUR INFORMATION:
Name of each attendee
Email address
Mailing Address, City, State, ZIP Code
Phone Number
Note: This event will sell out. Please be sure to mail your check early. Thank you.
Questions?? tacanow@cox.net
Who is Dr Jerry? www.icdrc.org
Babysitting: Unfortunately no babysitting is available for this event
FINAL NOTE: This conference is ¾ sold out!
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4 General News:
Lisa, Would you share the following information with the TACA families? If SEHO closes on May 31, there will be no place for families to take their disputes with their school districts. As a parent who has had to go through due process every year in order to obtain an appropriate education for my child, I know what an important function SEHO has. At this time, there is no other agency that is prepared to take on that function. I am trying to spread the word to as many families as possible.
Thank you.
Karen Nagy – a concerned parent
The Special Education Hearing Office (SEHO) contract expires May 31, 2003. This is bad news for families with children in special education:
There is no agency ready to step in and take over.
Families in California with school district disputes will have no place to go for due process.
What Parents Can Do
Call the Governor’s Office
Get the following to call the Governor’s Office:
State Assembly Representative
Mayors
US Congressmen
This is what to say:
Urge the Governor to stay the decision by the State Office of Personnel
Urge the Governor to order the Office of General Services to approve the 13 month extension on SEHO’s contract until an appropriate agency that can carry out SEHO’s function—with proper personnel and training—is ready to take over.
To contact the Governor
Governor Gray Davis
State Capitol Building
Sacramento, CA 95814
Phone: 916-445-2841
Fax: 916-445-4633
governor@governor.ca.gov
Please be sure to include your name and address when you communicate with the
Governor's Office. The Governor’s Office does not accept e-mail
attachments."
To find your state representatives go to
http://www.assembly.ca.gov/acs/acsframeset7text.htm
and click "find my district" on the left-hand menu bar
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SEHO Contract Expires May 31, 2003
Background Information:
In June 2000, the Special Education Hearing Office (SEHO) was awarded the contract to administer the due process system by the California Department of Education. SEHO has had the contract for over ten years. There were many other bidders. Among the failed bidders was the Office of Administrative Hearings. Families of special needs children may know of the OAH because OAH handles families’ disputes with the Regional Centers.
OAH, among others, believes that SEHO should not have been awarded the contract because
SEHO is not a state agency, it is a private, non profit
SEHO personnel are not state employees
As a result, the Union of Administrative Hearing Officers filed a grievance with the State Office of Personnel (which is overseen by the Office of General Services). The grievance hearing officer
determined that the SEHO contract was illegal under the Constitution of the State of California because SEHO personnel are not public employees
ordered that the SEHO contract not be renewed.
The contract, on its own terms, will now expire on May 31, 2003. The California Department of Education and SEHO are appealing the decision.
In the meantime, May 31 is rapidly approaching and if we can not get an extension on the SEHO contract, they will shut down. There is no agency ready to step in and take over. This means that families with school district disputes will have no place to go.
THIS CAN NOT HAPPEN!
While we may not be able to get SEHO back, we must insist, at the very least, on an extension of their contract in order to
prevent a lapse in services
allow for a smooth transition to another agency (this includes getting operational systems in place and getting proper personnel and training)
More IDEA LAW RE-AUTHORIZATION
(NOTE: TACA aims to make families aware of any potential legislation that could affect families with autism – we do not engage in lobbying in any way. Please take time to educate yourself on important issues and draw your own conclusions.)
Congressman George Miller (D-CA)
Senior Democratic Member, House Education and Workforce Committee
IDEA Reauthorization (H.R. 1350) Passes U.S. House
Eviscerates Parents' Civil Rights
Breaks Promise to Provide Desperately Needed Funding
Encourages Expulsion of Vulnerable Children
On Wednesday, April 30th the U.S. House of Representatives passed H.R. 1350, the Republican IDEA Reauthorization bill, by a vote of 251 to 171.
The bill passed largely along party lines. 96% of Republicans voted for the bill; 87% of Democrats voted against it.
H.R. 1350 was introduced on March 19th. No hearings were held on this bill (a general hearing on IDEA - the only IDEA hearing of the 108th Congress - was held on March 13th, 6 days before the bill's introduction. We joined with parents and advocates in requesting subsequent hearings on the bill but were denied the opportunity by Chairman Boehner).
The bill was the rushed through the legislative process. The Education Subcommittee passed ("marked-up") the bill on April 2nd, and the Full Education Committee passed the bill a week later.
Virtually none of the recommendations made by parents of and advocates for children disabilities were included in the bill either in Committee mark-up or on the floor.
HR 1350 Policies: First, Do Harm
The bill as passed by the House still contains the very harmful policy provisions that were discussed in previous issues of this newsletter:
Places a Gag order on Parents - Parents would be barred from raising new issues in defending the rights of their children at due process hearings - even if new evidence has surfaced.
Places a Straight Jacket on Hearing Officers - Under the bill, hearing officers (objective individuals who resolve disputes between parents and school districts) would be barred from judging whether school districts violate IDEA's procedural protections for children with disabilities.
Institutes a One-year Statute of Limitations - Parents would be denied the ability to raise problems with their child's educational services after one year.
Allows States to Waive Longstanding Protections for Children and Parents - Under the bill, 10 States could operate paperwork reduction pilots. Criteria for these pilots are undefined and could allow schools to not provide parents with substantive IDEA documents, such as individualized education programs (IEPs) and procedural safeguard notices.
Caps on Attorneys' Fees Reimbursement - The Republican bill would require Governors to set the rate of attorneys' fees reimbursement when a parent wins a due process hearing against a school agency. This cap on attorneys' fees, which affects only the parents, not the school district, will prevent low and moderate income parents from acquiring legal representation to protect the legal rights of their disabled children.
Broken Promises: No Additional IDEA
Funding
A Democratic amendment to ensure that the funds promised for special education
are actually delivered was disallowed by the House Republican leadership.
H.R. 1350 doesn't provide a single extra dime of funding for IDEA. Claims that this bill puts us on the path to full funding are incorrect.
Despite many promises made in the last Congress about meeting our 28-year-old responsibility to fully fund the special education program, this bill fails to provide the necessary funding, meaning additional strains on overburdened states and local education budgets. In fact, H.R. 1350 actually caps the amount of funding which Congress can provide for IDEA.
Little Changed During Floor
Consideration
During floor consideration of HR 1350, no significant changes were made.
Two voucher amendments were defeated, as was the Tancredo amendment that would
redefine the term specific learning disability in a manner, which in effect
would jeopardize identification of children with disabilities.
Attached are roll call votes for amendments to H.R. 1350 and for final passage. (Click on the links to see the breakdown of how Members voted.)
1) Vitter paperwork study amendment --
Yeas: 413 Nays: 0
http://clerkweb.house.gov/cgi-bin/vote.exe?year=2003&rollnumber=150
2) DeMint voucher amendment -- Yeas: 182 Nays: 240
http://clerkweb.house.gov/cgi-bin/vote.exe?year=2003&rollnumber=151
3) Musgrave voucher amendment -- Yeas: 176 Nays: 247
http://clerkweb.house.gov/cgi-bin/vote.exe?year=2003&rollnumber=152
4) Tancredo amendment on redefining specific learning disability --
Yeas: 54 Nays: 367
http://clerkweb.house.gov/cgi-bin/vote.exe?year=2003&rollnumber=153
5) Final passage of H.R. 1350 -- Yeas: 251 Nays: 171
http://clerkweb.house.gov/cgi-bin/vote.exe?year=2003&rollnumber=154
6) Rules Committee Summary of Amendments
http://www.house.gov/rules/108rule1350.htm
AUTISM IN CALIFORNIA RISES AGAIN!
You may or may have not read the story – it was covered in about a dozen papers across the US including LA Times, OC Register, NY Times, Washington Post – etc. Here are some interesting opinions and information on the rise of Autism in California.
May 13, 2003
Autism is the fastest growing disability served by the California Department of Developmental
Services (DDS), affecting more than 21,000 persons in California and representing a nearly 100
percent increase in caseload since 1999. California takes these growing numbers
very seriously as evidenced by the fact that each of the 21,000 persons who
have been diagnosed are receiving services through our 21 regional centers and
five developmental centers.
DDS does not conduct research on its clients and, therefore, we do not know the
cause of autism. However, through our partnership with the U.C. Davis M.I.N.D.
Institute, we are working diligently with the research community to find the
answer. California's efforts in monitoring,
researching and providing services to this growing population are recognized
throughout the world and have made California a leading resource for information about autism.
As a result of the DDS Autism Initiative, California has made significant improvements and advances in identifying and
effectively treating persons in California who have been diagnosed with autism.
Our continuing efforts include the release of the DDS Autism Initiative
Highlights and our new report on California's autism population: Autistic Spectrum Disorders, Changes in the
California Caseload: 1999-2002. This report states that from December 1998
through December 2002, persons diagnosed with autism served by DDS increased
from 10,360 to 20,377. In addition, between 1987 and December 2002, the
population of persons with autism served by DDS increased by 634 percent. The
report is based on data of persons served by DDS and professionally diagnosed
with full syndrome autism.
The increase does not include children under 3 years of age, persons classified
with lesser forms of autism, persons who have not entered California's voluntary developmental services
system or persons who are suspected of having autism, but are not yet
diagnosed.
California is not alone in this experience.
The rate of growth in the population of persons with autism in California is commensurate with reported
increases in other states, such as Georgia, Massachusetts and Minnesota.
10 KEY
POINTS AND FINDINGS
"AUTISTIC SPECTRUM DISORDERS, CHANGES IN THE CALIFORNIA
CASELOAD:
CALIFORNIA DEPARTMENT OF DEVELOPMENTAL SERVICES
APRIL, 2003
(REPORT AVAILABLE AT: WWW.DDS.CA.GOV\AUTISM)
BY RICK ROLLENS
1. The rapid increase in autism in California began
in the early 1980's. 85% of the entire autism population were born AFTER 1978,
with 70% of the autism population today between the ages of 3 and 14 years
old. Fifteen years ago in 1987 there were 2778 persons with autism in the
entire system. By the end of 1998 there were 10,360 cases. By the end of 2002
there were 20,377 cases. (Keep in mind that 15 years ago there were 2778
persons with full spectrum autism in the entire state system...while in calandar
year 2002 alone California added 3575 new cases in one 12 month period.
"Autism" in the Report does not include children under 3 years old
with autism, nor does it include any other autistic spectrum disorders such as
PDD, NOS, or Asperger's.)
2. During the15 year period from 1987-2002 the number of new cases of
autism increased by 634% while the number of other disabilities only increased
between 57% and 79%. The rate of increase in autism cases has excellerated over
the past four years with no signs that the rate has or is slowing down.
In the past four years, 1999-2002, the number of new cases of autism nearly
doubled from 10,360 cases on 12/31/98 to 20,377 cases on 12/31/2002. (The
current annual increase growth in autism is nearly 25% a year, with a doubling
of the caseload about every four years.)
3. Autism once rare (1-10,000 births), is now the number one disability
entering California's Developmental Services system and
growing at an excelerated rate. More common than childhood cancer, diabetes,
and Down's Syndrome, and within 3 to 4 years will surpass in total number of
cases both cerebral palsy and epilepsy in California's DD
system. Autism is the fasting growing, as well as the number one disability
entering California's system.
4. The prevelence of autism in California (uncorrected for factors
including, but not limited to, underdiagnoses and not accounting for those who
do not enroll in California's voluntary system) has
increased 800% between 1970 (1-2500 births) through 1997 (1-323 births). The
1-323 figure only reflects those born in 1997, and does not include the birth
cohorts from 1998-2002. The 1-323 figure only includes those cases of
professionally diagnosed DSM IV full spectrum autism and DOES NOT include other
autism spectrum disorders such as PDD, NOS, or Asperger's Syndrome. (This prevelence
figure of 1-323 for the 1997 birth cohort far exceeds any previous prevelence
numbers used by autism researchers or federal agencies such as the NIH or CDC.
If we know that the prevelence of full syndrome autism for those born in 1997
is 1-323, then we know that when those children who were born in years 1998,
1999, 2000, 2001, and 2002 are counted, then the prevelence numbers today in
year 2003 will not be 1-500 (as currently estimated by CDC and NIH) but much
closer to 1-150 cases of full syndrome autism. The prevelence if you include
all autism spectrum disorders? God only knows.)
5. There has been no "diagnostic shift" from mental retardation to
autism accounting for the increase in autism.
6. In the past four years, 1999-2002, full syndrome autism increased 97% while
cerebral palsy, epilepsy, and mental retardation increased 16%, 16%, and 20%
respectively.
7. A documented dramatic shift in new cases of autism presenting with no mental
retardation, suggesting the possible emergence of new phenotype(s) of
autism.
8. Profound impact in the near future to taxpayers for cost of care for the
over 14,000 children (70% of entire autism population) aging into much more expensive
out of home care. Currently 97% of 3-14 year olds live at home, by ages 15-29
only 74% live at home, for those over 30 years old only 30% live at home.
(Currently, California spends on average $ 5,000 per year on
children with autism ages 3-13, California spends on average $
25,000 to 30,000 per year on persons with autism 21 years old and older.)
9. The gender bias in autism that impacts more boys then girls has increased to
82% boys with autism, 18% girls.
10. From 1987 through 2002, the proportion of the Asian and Hispanic autism
population relative to the entire autism population more then doubled.
Smith Statement on California Autism
Report
May 13, 2003 - WASHINGTON, D.C. - Congressman
Chris Smith, Co-Chairman of the Congressional Coalition for Autism Research and
Education (CARE - also known as the Autism Caucus), made the following
statement today regarding the California Department of Developmental Services'
latest report on autism spectrum disorders.
The report states that during the four
years between December of 1998 and December of 2002, the total number of
Californians with autism served by the department nearly doubled from 10,360 to
20,377. During the 15 years from 1987 to 2002, autism cases increased by
nearly 634 percent.
"The numbers reported in the California
study are reason for continued concern and underscores that the federal
government must make autism research and treatment a priority.
It is my hope that this report will spur my colleagues in Congress to quickly
act on initiatives to both increase surveillance and data analysis of autism
nationwide and also ensure that the patients and families of those suffering
from autism have access to services they need to live full lives.
"More children have been diagnosed with autism than originally estimated,
and the federal government must respond appropriately and compassionately.
As such, we should enact legislation -
such as my TEACH Act (HR 1700) - that will help bring more qualified teachers
into the classroom, help families receive support and services they need for
their children, and help ensure vocational programs to assist people with
autism transition from school to work are functioning as intended.
"With regard to surveillance, we must establish collection and analysis
projects in more states to provide researchers with access to a large enough
data pool so that they may be able to determine causes and cures for autism.
Right now, we don't have the necessary network of surveillance programs
to determine if this California study is accurately capturing a national trend, as we
believe it is."
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5) New Resources for Southern California
Occupational Therapist:
Current
openings for Individual OT Sessions
Private Pay or School District Funding.
Therapist is very experienced licensed OTR, specializing in treatment of
children with autism.
The Speech & Language Connection, Inc.
660 Baker St. #111
Costa Mesa, CA 92626
Phone (714) 424-9392
Fax (714) 424-9394
Medical test Blood Draws
THE GREAT PLAINS LAB is offering phlebotomy services provided by, Kristine Davis LVN. I am the California consultant for GPL. I have worked as a Pediatric Nurse for a majority of my 13 years, licensed. I am both certified in IV and Phlebotomy. In order to protect your child, I use a papoose and arm board. This has worked out wonderfully!
I do have kits available, if anyone needs them. Please request kits before your appointment.
PLEASE BE SURE TO HAVE A GREAT PLAINS LAB SHEET SIGNED BY A DOCTOR, QUALIFIED NP, PA, OR CHIROPRACTOR, prior to collecting any and all lab work.
I find that the children I have been drawing blood on have been much more relaxed and seem less traumatized by having the procedure done in a home setting. If any parents are interested in opening their home to a group of children in need of labs, please contact me.
Since I am covering a wide area of Southern Ca., I ask that anyone interested in phlebotomy services ask other members of your support group if they need the service as well. If we can't get a group together for your area, I will make arrangements to either come to your house or meet at one of the designated lab sites.
I am currently in the process of setting up lab sites in different areas of So. Cal. There are two clinical offices one in Torrance and another in Santa Monica that I can use. Address and directions will be provided at time of appointment.
PARENT OR GUARDIAN MUST BE PRESENT WITH CHILD, and bring identification.
IF YOU CHILD IS ALLERGIC to TAPES or LATEX, please let me know prior to the appointment.
Starting on May 1, 2003, there will be a individual phlebotomy fee of $15.00. For groups larger than 4, the individual price will be $10.00
CONTACT Kris Davis at (909) 454-5747 or by email at Krisyd@juno.com for any questions or to schedule an appointment.
.
REMINDER** Please read all directions for lab collection kits prior to collecting and transporting specimens. All information must be completed on the lab sheets prior to lab collection.
NEW SPECIAL EDUCATION ATTORNEY OPENS PRACTICE:
Law Offices of Jack H.
Anthony, 600 W. Santa Ana Blvd., Suite 405, Santa Ana, CA 92701
(714) 835-4333.
New Advocate:
Kristina Nicole, 790 N. Euclid Street, Suite 332, Anaheim, CA 92801 (714) 224-1440.
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6) CONFERENCES IN SOUTHERN CALIFORNIA:
2003 TRAINING DIVISION CALENDER
Solutions for Language Training
July 22-23, 2003
Teaching Play and Social Skills
July 24, 2003
Assessment of Basic Language and Learning Skills (ABLLS)
July 28, 2003
Teaching Children with Language Delays
August 25-28, 2003
Teaching Verbal Behavior
July 29-31, 2003
All workshops run 9:00 4:00.
The workshops will be held at:
Centre Concord - 5298 Clayton St. - Concord, CA 94521
For additional information regarding these courses, please check out our
website at http://www.behavioranalysts.com
Register early courses have a participation limit > of 20!
To register: Contact Laurie Winkler at winkler@behavioranalysts.com or
(925) 210 9370 ext. 100
Questions: Contact Stacy Carroll at carroll@behavioranalysts.com or
(925) 210-9370 ext.109
MAJOR CONFERENCE IN SOUTHERN CALIFORNIA BY GREAT PLAINS LABS!
Did you know the DAN! (Defeat Autism NOW) Conference is not being held in San Diego this year? Instead it will be held in Oregon! Here is a great conference to attend held right here in Southern California!
June 21-22, 2003 in Anaheim - National Autism Conference on the Recent Findings in the biological and behavioral therapies for Autism, PDD and Hyperactivity Disorders.Organized by the Great Plains Laboratory, Inc. with collaboratorion of the Talk About Curing Autism and Center for Autism and Related Disorders
Registration fees
Early-bird special Before May 1
Internet registration $149.00, mail, fax or phone $159.00
After May 1, 2003
Internet registrations $189.00, mail, fax or phone $199.00
Spanish session only (Saturday night) $25.00 (this fee does not apply if
you register for the conference)
No refunds are given after May 22, 2003
For more information and registration: www.greatplainslaboratory.com
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7) FREE SOCIAL EVENTS FOR TACA FAMILIES!!
South Coast Plaza FREE Carousel rides!
Attention all TACA members! Diane Gallant has worked hard with South Coast Plaza management in arranging FREE CAROUSEL RIDES for children with Autism and their siblings!!
Come join us for a morning of fun and horse rides at South Coast Plaza!
Dates:
Next 2 dates are: Saturday, 5/17/2003 and 6/21/2003
Times: 8:30am-9:30am (BEFORE the mall opens)
Local: South Coast Plaza by the carousel (NOT the Crystal Court carousel!)
Costs: FREE!!!!!!!!!
Park: Park by ZTejas Restaurant and the Bank of America ATM’s off Bristol
Note: Kids can ride as often as they would like and based on availability. Come join us for some free fun!!
NO NEED TO RSVP! JUST COME AND PLAY!!
______________________________________________________________________
8) NEW BOOK ON AUTISM (publication date May 15, 2003)
TREATING AUTISM PARENT STORIES OF HOPE AND SUCCESS
Edited by Stephen M. Edelson, Ph.D. and Bernard Rimland, Ph.D.
From the Introduction:
The aim of this book is to provide in-depth stories written by parents and doctors who have used the rational, non-drug Defeat Autism Now! (DAN!) biomedical treatments recommended by ARI to improve the lives of autistic children. We hope these stories will give parents hope and direction, and provide physicians and other health-care practitioners with real-life evidence that the era of simply drugging and institutionalizing autistic children has given way to an era of effectively treating them, often bringing
about major improvement, and sometimes recovery.
This book is divided into four parts:
Part I contains chapters written by Drs. Bernard Rimland, John Green, and Stephen M. Edelson. Dr. Rimland describes his introduction to autism when he and his wife discovered, in 1958, that their two-year-old son, Mark, was autistic. Dr. Rimland then shares with the reader valuable insights based on
his nearly 50 years of experience with autism. Dr. Green describes his perspective as a physician who has successfully treated autistic individuals and provides the reader with an excellent introduction to the Defeat Autism Now! (DAN!) approach. Dr. Edelson discusses what he would do if he were a parent, and suggests ways in which parents may determine if a treatment truly helped their child.
Part II consists of 34 parent-written accounts of how autistic individuals have benefited from the DAN! approach. These are only a small sampling of those who have improved, and even recovered, as a result of effective biomedical approaches to autism. We hope that as you read the true stories in this book, you will gain both inspiration and practical guidance from the parents and professionals who are revolutionizing the treatment of autistic children and eliminating the word “hopeless” from the vocabulary of autism.
Part III contains 58 “Letters to the Editor,” from the Autism Research Review International (ARRI), which were written by parents (and some professionals) to report their experience with vitamin B6 with magnesium and dimethylglycine (DMG). ARI has received many hundreds of such letters from parents describing remarkable improvement in their children as a result of using these supplements.
Part IV consists of five Appendices providing useful tools and resources.
May 2003, paperback, approximately 400 pages, $20.00 (add $2 per copy for shipping and handling)
------------------------------------------------------------------------
AUTISM RESEARCH INSTITUTE • Mail or fax to: 4182 Adams Avenue, San Diego, CA
92116 • Fax (619) 563-6840
ORDER FORM -- TREATING AUTISM
___ Number of copies ($22 per copy, includes shipping & handling): $______
Optional Donation (ARI is a non-profit 501(c)3 organization): $______
TOTAL ENCLOSED: $______
Name______________________________________________________________
Address____________________________________________________________
City______________________________ State_____ Zip_________ Country_______ Phone_______________________ Fax__________________ Email_________________
____Check enclosed ____Bill my credit card
____VISA ____MasterCard ____Am Express ____Discover
Card #_____________________________________________ Exp. Date____________
Signature____________________________________________________________
9) Personal Note
OK, it is IEP season! How is everyone’s IEP’s going? I hope well. For us, it is busy! Dr Jerry coming out, Jeff’s program (biomedical and behavioral intervention) is going strong and I GOT BRACES. (I guess this means I am going through puberty again.) It is a busy time.
I am sending good thoughts out to you all wishing you happy IEP season and that you obtain the program services your children need.
______________________________________________________
Hugs, thanks and be safe -
Lisa A Jeff's mom
Web Page for the TACA GROUP: www.talkaboutcuringautism.org - check it out!
Talk About Curing Autism (TACA) provides general information of interest to the autism community. The information comes from a variety of sources and TACA does not independently verify any of it. The views expressed herein are not necessarily TACA’s.
TACA does not engage in lobbying or other political activities.
P.S. TACA e-news is now at 609 families
Of course Autism is growing – this list was 10 families in November 2000!